Alan Park

Name

Alan Park

Year of Birth

1947

Gender

Male

Location

Hillsdale, NJ

Relationship

Patient

Short Bio

Been diagnosed with IPF about 5-6 years ago. Took Espriet for 3 miserable months so I stopped, then doctor recommended lower dosage but same results. I have stents so I am not able to take Ofev. Fortunately my symptoms are not too bad, I do get tired fairly quickly but I know my limitations. I have CT scans going back 11 years that show some form of IPF.

I’m pretty sure I got this from exposure to plutonium back when I was in the Air Force stationed at a Bomarc missile site in NJ that had an accident where 1 silo caught fire and caused a plutonium leakage. I didn’t know about this until about 6 years ago, I’m now trying to claim a disability with the VA but so far no luck.

Type of Diagnosis

IPF

Treatment / Medical Facility

Was on Espriet, not able to tolerate.

Current medication regimen

None (for IPF)

Lung transplantation status

considering later

Supplemental Oxygen

no

Best advice for PF symptom management

Unfortunately I do not have any advise. Just know your limitations.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

minimum of 11 years

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