• Alejandro posted an update 9 months, 1 week ago

    Hi, everyone. My mom has fibrosis. I would like to get some advices about my moms sickness. Can my mom get better with breathing, coughing. She is taking ofev.( nitedanib) to slow down the sickess. I am looking for help. Information

    • Hi Alejandro,
      There are forums here for discussing the two main antifibrotic medications, Ofev and Esbriet. Those two medications are the main treatments for slowing fibrosis, but there are clinical trials, herbal remedies like green tea extract, and other treatments that people have discussed at length on this forum. I’d suggest starting by reading through posts in the “Join the discussion forum”. There is also a forum called “Diagnosis information and general questions” that might contain some useful information for you in learning about your mom’s illness. Pulmonary fibrosis is, unfortunately, a progressive disease, but things like regular exercise, pulmonary rehabilitation, and supplemental oxygen can all help with symptoms, in addition to the medication regimen. People have also recently been talking about cough drops and sinus rinses as ways to combat the PF cough. My suggestion is to peruse some of the forums to get general information, and ask specific questions on posts that are relevant to your mom’s situation. The tricky thing about this disease is that it looks a little different in everyone. It’s hard to predict. But you have a super helpful, compassionate community here to help you learn and navigate this experience with your mom. There is also a caregiver specific forum if you find you need support as well. I am a caregiver, too, so feel free to message me if you need a buddy 🙂
      Let me know if you have any questions about using the forum.
      Christie
      Ofev forum:
      Diagnosis Q’s:
      Join in:
      Caregiver forum:

    • Thanks for your message. It is so sad and hard this sickness. And Finally i am getting some answers about this sickness because of ypur answer.

      I wanted to ask you about the drops, and the green tee. Do you recomend a specif brand because i was living in the states but because of my mom sickness i had to go back to colombia.

      Do do you know where i can find these products.

      Once , again thanks and if you know any other information

      Please let me know it

      Many thanks in advance

      Alejandro

      • I don’t personally have experience with green tea extract, but this thread is all about it. It sounds like you can order it on amazon, but read the thread first to see what the dosages are and what is working for other people. Also keep in mind that these are fellow patients, and likely not medical professionals (though there are a few in the forums), so take all the info with a grain of salt.

        You can also use the “search forums” bar at the top of the forum home page to look for keywords. I found that thread by searching “green tea” 🙂 there is more out there, but this is a good start.

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