Forum Replies Created

  • Alfie Lee

    Member
    July 13, 2022 at 12:20 am in reply to: Why do IPF patients lose weight and how to help
    • IPF and wt loss……I’m 83 yrs young and from a family where most of the males are slender or Ectomorph…..in other words overweight has not been an issue…..prior to my experience with IPF of 5-6 yrs, appetite was not on an issue for me other than it wasn’t noticeable to me and at 6ft and 165 lbs and I had to remind myself to eat. However as my earlier undiagnosed IPF began to seriously rear its ugly head I began to feel Ill with many of the symptoms we all experience with this disease and a zero appetite……at 141 lbs I knew I was in trouble. Eventually what was thought to be COPD was correctly diagnosed at Sansum Clinic in Santa Barbara as IPF Severe. Part of my initial treatment included an introduction with OFEV. First 100mg then 150 when things seemed tolerable with 100mg. Within a short time OFEV150 was a physical disaster for me and I stopped. After a months pause I started or returned to 100mgs…….after about 6 weeks I am at another pause…….one more try at the lower dose. However, during the course of my treatment from Sansum, there was and continues to be a bright spot from my medical treatment program…….a prescription and on-going daily ingestion of 5 mg of Dronobinol (THC) two hours before evening meals plus a OTC Pepcid. This treatment has worked for me where I have been able stabilize my wt not at my desired wt but still mid 140s. So folks for those of you who can get beyond the “Devil Weed” culture, you might just find that this little green pill will enhance your appetite and add a little comfort to your souls.