I have both grab rails and a shower stool, but a long tube with the concentrator turned up is my salvation. Sit down afterwards (I sit on the lid of the toilet!) to dry yourself , put on your clothes, pick up things that are on the floor and sort out the damp towels. There is no law that says these jobs have to done standing up!…[Read more]
I have been feeling the same about having a shower, it is so flipping hard work! It is worth bearing in mind that the physics of warm damp air dictates that it contains far less oxygen. Basically you are breathing in more water and less oxygen. As I live in a low lying rather humid part of the UK I notice on a warm day that I find my breathing…[Read more]
Yes the error message on the RHS was “could not post right now”. I thought my internet service had dropped off line so I had a look at my settings and they were OK but by the time I came back to my post it had vanished into the ether!. Cheers Anne
Technology can be a pain, I have just typed in a long reply only to be told that it was unable to be posted , then it promptly lost all that I had typed in grrrrrrr! Lost the will to live at the moment will have another go later!
While I may dish out words of “wisdom” sat here upon on my Granny seat, it is lovely to read all your thoughts…. lung transplant, wow I didn’t know that could be an option. But as spare lungs are rarer than hen’s teeth I think it would be selfish of me to deny the chance of a new lung for a younger person, mind you if it was offered I would go…[Read more]
I have had a “fit to fly ” test in the past. They hook you up to a machine for 20 mins which provides the same oxygen level as a pressurised airplane cabin. If you don’t drop below approx 90% you are ok to fly. I was ok then but obvs not now. The Respiratory people said, just before I went on holiday in January, as long as I could provide oxygen…[Read more]
The last time I flew wasl in January on 2 x 4.5 hour flights, my respiratory team thought I would be ok. I bought a incredibly expensive concentrator plus extra batteries for flying but I found it very difficult to maintain my sats. I was gulping oxygen at pulsed 5l the whole flight so it was gobbling up the batteries, very stressful…. then I…[Read more]
The last 6 min walk I did made me so ill that I was in bed for 2 days. When I have done subsequent tests I have refused to do more than 2 or 3 mins, I think they have got the message…. now as they just take my sats without supplementary oxygen. That tells them how much oxygen I need. So don’t stress do ONLY the minimum you feel comfortable with!
I have had a chronic sinus problem for 50 years, so now I am on supplementary oxygen 24/7 for my version of pulmonary fibrosis (it is not IPF) my sinus’ are shot to bits! I know I shouldn’t but I have a quick squirt of a Sinex decongestant last thing at night so I can breath through my nose until morning. Nothing else gives me a respite from a…[Read more]
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