Biography

Name	Anne Roberts
Nickname	anne-roberts
Year of Birth	05/10/1946
Gender	Female
Location	United Kingdom
Relationship	Patient
Short Bio	I Suffer from a form of PF called NSIP. It drives me nuts because it so rare keven my GP has not heard if it and there seems to be precious little research into this killer disease. I feel abandoned my the medlical reaseach fraternity
Type of Diagnosis	PF of known aetiology
Treatment / Medical Facility	Immune suppressant drugs plus steroasteroids uds
Current medication regimen	Immume suppressant drugs plus steroids plus cough suppressent drugs, plus oxygen 24/7
Lung transplantation status	ineligible
Supplemental Oxygen	yes
Best advice for PF symptom management	I Take oramorphine and or codine to supress the cough which sends my sats into the 70%’s. Also chewing on sugar free menthol gum and Fishernan’s Friends help to supress the cough and subsequent breathlessness
Are you currently taking an anti-fibrotic medication?	no
How did you find us?	PF News Website
How long have you or the person that you are caring for had PF?	4 years
Privacy Policy and Terms of Use	I agree

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