Anne Roberts

Name

Anne Roberts

Year of Birth

05/10/1946

Gender

Female

Location

United Kingdom

Relationship

Patient

Short Bio

I Suffer from a form of PF called NSIP. It drives me nuts because it so rare keven my GP has not heard if it and there seems to be precious little research into this killer disease. I feel abandoned my the medlical reaseach fraternity

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Immune suppressant drugs plus steroasteroids uds

Current medication regimen

Immume suppressant drugs plus steroids plus cough suppressent drugs, plus oxygen 24/7

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

I Take oramorphine and or codine to supress the cough which sends my sats into the 70%’s.  Also chewing on sugar free menthol gum and Fishernan’s Friends help to supress the cough and subsequent breathlessness

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

4 years

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