Biography

Name

AndreaJoy

Nickname

andreajoy

Year of Birth

1979

Location

Missouri

Relationship

Patient

Short Bio

Hey everyone, I’m Andrea I am 40 yrs old was diagnosed with Idiopathic Plumonary Fibrosis in 2015 at the age of 35. I also am a carrier for Surfactant Protein C Deficiency. It is unknown at this time what is causing my IPF as the tissue pattern does not match anything they have seen, apparently not even the Surfactant Deficiency though I believe my team is leaning more towards that. I am not on any medication for IPF except for 5 liters of o2 but started with 1 liter in Mar of 2018. I am not currently on the transplant list but followed by a team @ Barnes Jewish Hospital in St. Louis Mo.

Type of Diagnosis

IPF

Current medication regimen

5 liters or o2

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

How did you find us?

Other

How long have you or the person that you are caring for had PF?

5 years

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