Sita

@reshma
Dear Reshma

I find a lot of similarity between our moms. She says the same thing about milk too.

Steroids doesn’t cure any condition, it only gives them some relief. My mom and I resisted taking steroids until she could hold out. Then we agreed to 5 mg per day, it was then increased to 10 mg if we needed to travel or do something outside…[Read more]

Reshma,

When my mother was diagnosed in 2015, she was 125 lbs, now she is 95 lbs. She eats very little. She says she can’t taste or smell anything, sweet is the only taste she has retained. Thanks to heavy dose of steroids and cellcept, it leaves them with all these side effects.

I agree with Charlene, I give her ensure also, it gives them a…[Read more]

Charlene and Susan

Thank you for your response. Charlene, I appreciate all the extra information you have provided. I will call the oxygen company and have them come. Due to Covid, they haven’t shown up and it has been 4 months. I think I will also call my township and put my mom in the emergency list – I didn’t know these options existed. Thank…[Read more]

Susan,

Thank you for your kind words. I appreciate your feedback and I was thinking the same. I am sending some prayers and positive thoughts your way too.

I have a question on oxygen concentrator. My mom is on oxygen 24/7 and is dependent on this machine now. My questions are:

• Does this like other appliances get overheated? Should we be turning it off for sometime?
• Do most of you have a back up generator in the house in case of power failure?
• My mom’s POC hardly helps. Are all POCs on pulse…

[Read more]

Thank you all for your responses. I understand your shock. My mother is set up a bit differently than most people who live here in America. My mother lives with our family in the same house. I am her caregiver. After my dad passed away, she moved in with us. I take care of all her needs and she doesn’t want any responsibility. I take her to the…[Read more]

Thank you Mark. It is devastating for sure. I will try to find out about the option of a social worker. Are they associated with hospitals or with doctor’s office too? I am sorry, I am quite ignorant in this whole process.