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Linda replied to the topic Started Ofev…one week in now in the forum Ofev (Nintedanib) 2 years ago
I’m so glad to hear that you are tolerating OFEV well! I just received my first bottle yesterday. So far I haven’t taken any; just fearing the side affects I guess. I have to go to a family wedding this weekend so think I’ll wait til Monday when I can stay at home. I’m sure the bride will appreciate no puking in the pews! 🙂
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Linda replied to the topic Families of IPF/PF patients getting tested in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
Yes, it’s hereditary in my family too. I really had no symptoms except a dry cough which my Dr at the time didn’t think it was anything to worry about. I changed Drs to one whose practice was mostly patients over 65. He heard me cough just one time and immediately sent me for some tests which confirmed I have IPF. I can’t tell you how many Doc…[Read more]
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Linda posted a new activity comment 2 years ago
thanks so much! I’ve just received my 1st bottle of OFEV and I’m feeling so nervous about how I will react.
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Linda became a registered member 2 years ago
There’s a whole subforum just for OFEV discussions if you want to check how other people respond, or if you have questions 🙂 good luck!