Linda

Name

Linda

Year of Birth

1951

Gender

Female

Location

Brooklyn, ct

Relationship

Patient

Short Bio

I changed doctors a few years ago and when he heard my usual dry cough he sent me for an X Ray immediately and I was diagnosed with ILD.  My previous doc just said my cough was probably an allergy to dust.  The weird thing is that my sister also has a cough and when she had an X Ray her results turned out to be ILD too!  We were both stunned.  🙁  They apparently call this familial but only 2 of us are diagnosed positive.  I am the oldest and my symptoms have started to progress 🙁  I’m actually going to start on OFEV  tomorrow and hope I can tolerate it.  I’m happy to have found a group of people who are dealing with the same illness as myself.

 

Current medication regimen

starting OFEV this week, hope I can tolerate the side affects

Lung transplantation status

considering later

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

2 years+ not sure hoq long, always had breathing issues esp when I caught a cold

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