Anne Groves
Forum Replies Created
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Hi my name is Ann Groves quite new on here live in the uk. I have never heard of stem cell being done in the uk. Will keep looking. I was just wondering has anyone heard of a drug called Pamrevlumab it’s for PF. It seems to be in other countries but not here at the mo, it’s stage three testing but not quite sure what that means as regards to being released to the public, probably a way to go yet! . Thank you
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Hi Im new to this site, I live in the uk. I have had fibrosis for a long time now but last two years I have really noticed a big change. I have to have oxygen on walking now. Feel sad about that and am still trying to get my head around it, been since April this year. I have started on Perfenidone 5 weeks in so far. This site is so informative I have learnt many thing about this disease. I also have clubbing my nails bend over quite a bit, I tell my grandchildren I am turning into an Eagle ?. Wishing u all a good day. Anne ?
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Hi Marilyn I think that is so wrong also, when I read about fibrosis it said 2/5 years but I have had it for 15 years now. It has deteriorated a lot in the last two years but before that not too bad at all. I got mine through having rheumatoid.