@bakerbob
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Bob P started the topic Split Ofev doseages in the forum Ofev (Nintedanib) 1 month, 1 week ago
Has anyone tried taking one 150 MG and one 100 MG dose of Ofev per day? I have been taking to 150 MG doses a day but have had G.I. side effects, mostly in the evening. My pulmonologist ordered a reduced dosage to 100 MG but I have a few weeks of 150 MG doses left. I was going to try taking one 150 MG dose in the morning and one 100 MG dose in the…[Read more]
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Bob P replied to the topic Covid causing pulmonary fibrosis in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 months ago
Sallad, Kathleen and Brigid
I met two weeks ago with a pulmonologist at mass general hospital who specializes in environmental and occupational related issues. We were trying to identify a potential cause of my IPF. The type and location of scarring in my lungs is different than typical IPF and more commonly found in people with these type of…[Read more]
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Bob P replied to the topic IPF focused on airways in the forum Diagnosis Information and General Questions 4 months, 1 week ago
Susan – my blood disorder is known as anti-phospholipid syndrome. it makes me prone to clotting so I have been on blood thinners for 20+ years. other than the “catastrophic“ event that I had this summer it has not impacted me other than that I have been taking blood thinners since I was diagnosed. I try to stick with a relatively consistent die…[Read more]
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Bob P replied to the topic IPF focused on airways in the forum Diagnosis Information and General Questions 4 months, 2 weeks ago
Thanks Charlene.
I’ll let know if I learn more. I suspect there are a lot of things that I’ll never know for sure.
Take care
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Bob P started the topic IPF focused on airways in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
<span style=”-webkit-text-size-adjust: auto; caret-color: #000000; color: #000000; font-family: Arial; font-size: medium;”>I recently received the results of my lung biopsy, “Airway centered interstitial fibrosis with extensive bronchiolization and thickening of blood vessels” and will be starting Ofev soon. Concern about my lungs go back abo…[Read more]
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Bob P posted a new activity comment 4 months, 3 weeks ago
Thank you
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Bob P became a registered member 4 months, 3 weeks ago
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Hi Bob, thank you for joining your pulmonary fibrosis forum. Welcome!
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Thank you
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You are welcome Bob!
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You are welcome Bob!