Biography

Diagnosed with IPF 9/25/22018.  Since then, hospitalized 3 times for flareups.  (December, March & May).  I’m taking Esbriet, 3 pills, 3 times each day; am on oxygen at 6 liters active & 2 resting (with an oxymizer*).  I’m to undergo a sleep study soon to see if sleep apnea is an issue.  Prior to my IPF dx, I’ve lived with chronic pain issues since 1991; as well as COPD/emphysema.  As my pulmonologist has discussed lung transplant with me, I am in my 3rd week of pulmonary rehab, which is making me stronger.  I quit smoking 3/5/2019 & feel so much better since!

* The Oxymizer pendant® is a special oxygen cannula that can be used to supply high flow long term oxygen therapy. It is compatible with a wide variety of oxygen sources. In a reservoir, the Oxymizer® stores pure oxygen so that the concentration of inhaled oxygen is increased.