Biography

Name

Barbara Wilson

Nickname

barbara-wilson

Gender

Female

Location

Middleton WI

Relationship

Patient

Short Bio

I was officially diagnosed with IPF in 2010 following a lung biopsy, though I had been dealing with shortness of breath, a dry cough and lung crackles for several years before that. I was initially treated with a combination of Prednisone and Imuran for about 6 months. My symptoms and PFTs remained stable until an exacerbation in early 2018. Now in 2020 at age 72 I am essentially on oxygen 24/7, experiencing increasing sob and fatigue. Not a candidate for transplant so I guess this is my now normal.

Type of Diagnosis

IPF

Treatment / Medical Facility

University of Wisconsin Madison

Current medication regimen

Esbriet

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Pulmonary rehab exercise regimen pre-Covid helped me feel stronger with more stamina.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

10 years+

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