Barbara Wilson
@Barbara Wilson
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Joined Jun 2020 •
Not recently active
Biography
Name | Barbara Wilson |
Nickname | barbara-wilson |
Gender | Female |
Location | Middleton WI |
Relationship | Patient |
Short Bio | I was officially diagnosed with IPF in 2010 following a lung biopsy, though I had been dealing with shortness of breath, a dry cough and lung crackles for several years before that. I was initially treated with a combination of Prednisone and Imuran for about 6 months. My symptoms and PFTs remained stable until an exacerbation in early 2018. Now in 2020 at age 72 I am essentially on oxygen 24/7, experiencing increasing sob and fatigue. Not a candidate for transplant so I guess this is my now normal. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | University of Wisconsin Madison |
Current medication regimen | Esbriet |
Lung transplantation status | ineligible |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Pulmonary rehab exercise regimen pre-Covid helped me feel stronger with more stamina. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 10 years+ |
Privacy Policy and Terms of Use | I agree |