Forum Replies Created

  • Susan Becker

    Member
    January 2, 2019 at 9:09 am in reply to: Herbal Remedies & IPF

    Thanks Charlene and Steve,

    Great to have input from both of you.   The article on the herbal mix does not mention upcoming Clinical trials, but it is “oriented” toward a scientific review of the medication.

    I certainly agree that this is a grey area.  While I have no immediate medical team member who could assist, I am visiting Cleveland Clinic for an evaluation mid month and will certainly bring this up with the physician I see there.  Hopefully, something will turn up.

    Your thoughts on the article would be appreciated, as well.

    All the Best in 2019.

     

     

     

  • Susan Becker

    Member
    December 31, 2018 at 11:51 am in reply to: Herbal Remedies & IPF

    Thanks to you all for sharing this useful information.  I have had IPF for 2 1/2 years.  Recently I found information on one other herbal remedy I wanted to bring up for anyone’s comment.  It is called PMO14 and is a combination of 7 different herbs/plant species.

    It was referenced in the following article:
    https://www.nature.com/articles/s41598-018-35320-8
    The medicine is a product produced in South Korea.  I have no direct contact with them to date and truthfully would feel much safer with a contact or at least a recommendation from someone in the U.S.

    Several of you have brought to light different herbal options.  Certainly there must be a knowledgable person or a supplier in the U.S.   Interested in any thoughts or suggestions.

    The best to you all,

    Susan