Bruce Hawn

My mother & grandmother both died of IPF. I am 3rd generation with IPF. I paid $3,000 to get genetic testing. Results were something they had not seen and so I have to get my telomeres tested if short most likely means familial an if not they will stick with inconclusive. Once I get my telomeres tested if they are short, then they can test my…[Read more]

My understanding is that you lose your eligibility to participate in their co-pay program, once you go from private insurance to Medicare.  Have to be privately insured.  Not sure why, but am sure that is one of the ways, maybe only way, you lose eligibility for the OFEV copay program, other than cancellation of the entire program.

I was on on Esbriet and for first 2 months no problem. After that hyper sensitivity to ANY sun exposure. Finger tips & knuckles cracked open, rash on skin. Horrible itching. Docs took me off & put me on OFEV. Much better no such issues.

I have been taking Green Tea Extract for about a year now. My thought is that it can only help.  I have lost weight, but I am overweight and have been trying to lose weight.  I do not believe that the Green Tea Extract has assisted in my weight loss, unless it somehow helps increases will power to cheat on diet or sticking with regular e…[Read more]

I am a 60 year old and recently switched from Esbriet to OFEV,  had horrible skin issues with Esbriet.  I was extremely nervous about OFEV because my Esbriet welcome package contained a bottle of sunscreen, and that didn’t work out so well for me. OFEV’s welcome kit with Imodium did scare me.  In talking to the various people with OFEV, they al…[Read more]