Forum Replies Created

  • Barbara Walter

    Member
    December 19, 2023 at 3:06 pm in reply to: Intro

    OBTW I have IPF and take Ofev 100mg twice a day. I was diagnosed 3/22.

  • Barbara Walter

    Member
    December 19, 2023 at 3:04 pm in reply to: Intro

    Why is your RN daughter opposed to Ofev? Is her area of specialty IPF or Pulmonalogy? I’m an RN with 50 years experience and a Masters Degree and my research into Ofev found that studies show that is has a significant impact on slowing the progression. It does have side effects that varies with intensity among the users. In addition Ofev or Pirfidodone, treatment for reflux’ and general healthy behaviors including pulmonary rehab. help reduce the progression of the disease. Just curious. .

  • Barbara Walter

    Member
    October 31, 2023 at 3:14 pm in reply to: OFEV Side Effect reduced!

    I am surprised that you found raisin toast effective in combating GI symptoms. It’s a carb with fiber but what ever works, great.

  • Barbara Walter

    Member
    October 31, 2023 at 3:11 pm in reply to: OFEV Side Effect reduced!

    Do you mean sublingual not subcutaneous? Subcutaneous is under the skin and requires a needle. Sublingual is under the tongue. (I’m a nurse) glad it works.