Forum Replies Created

  • Betty J. Rhodes

    Member
    October 30, 2024 at 4:35 pm in reply to: Loneliness

    You are so lucky to have a loving wife. I am another of the alone ones, one daughter in FLA.,a d a son 40 miles away. Np close neighbors. Only outlet I have is a visit quarterly to staff at clinical trials office. I have had ipf for almost 5 years now, I have a strong beliefe that the experimental meds from Clinical trials have worked somewhat. Am a retired RN, with 50 yrs past experience, but never dealt with anything like this awful diagnosis. Neither of my children want to discuss end of life issue. have paid funeral, and am pretty good dealing with my death.

  • Betty J. Rhodes

    Member
    May 28, 2024 at 3:10 pm in reply to: Breathlessness at the dentist

    I, too, took a portable unit with me recently. It worked just fine. I also utilized a wheel chair for the visit. My new young dentist also assisted in rolling out me out to the car. He is a (keeper!)