• Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 5 days ago

    @Charlene Marshall

    Good afternoon Charlene and everyone else who might be tuned in.  We all find ourselves in the middle of what many describe as a nightmare and given our respective underlying lung condition, we have to take extra caution.  As you know my wife and I winter in Florida and were not scheduled to return until April 25th.  However wh…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 weeks ago

    Stay well everyone.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 month, 3 weeks ago

    Carol:

    A correction to my earlier post.  I started OFEV in July 2018 not 2019.

    Bob

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 month, 3 weeks ago

    Hi Carol:

    I too am Canadian and live about an hour and a half east of Toronto.  I’m 81 and was first diagnosed in 2012.  Compared with others on here I didn’t experience the usual breathing problems or other symptoms and as a result I didn’t go on OFEV until July 2019 at the 150mg dosage.  Could you comment on why you didn’t go on OFEV until re…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    Hi Charlene:

    This is a test to see if my post posts…LOL

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago

    Hi Charlene:

    Been away…actually up in Hamilton Ontario for a few days.  Used that new no frills airline Swoop owned by WestJet.  Went through the worst nightmare flights due to weather and maintenance problems.  Not all Swoops fault.  But Hamilton airport is a disaster for passengers.  Will never use it again if nothing changes.

     

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago

    Hi Marie:

    I hope you get this. I received a friend request from you but i’ve been away and when I tried to acknowledge it, it had disappeared.  If you want to send it again i’ll be glad to accept.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    We are here until the end of April.  Due back in Ontario on April 27th.

    Happy New Year to you too!

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Glenda:

    Thank you for giving us your background information.  It is very helpful to know as there are usually differences on the handling of OFEV in different countries and I know there are definite differences between Canada and the US.  I was born in Belfast N.Ireland, went to live in London at age 16, got married to a gal from G…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene and Glenda:

    Rain long gone and today it is 80F and these temps will continue until about next Thursday when the next Front s due to drop us back down into the 60s for a few days.  That’s typical Florida winter weather, particularly in an El Nino year.

    Yes try Glucosomine.  My wife also uses it and swears by it.  By the way I spelt it…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene and Glenda:

    I copied the drug manufacturers name from the internet so that explains all that gobilty-gook before the name.  No I wasn’t drunk!!

    Bob

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene and Glenda:

    I have to admit you are both the only people I have heard of who have experienced joint and muscle pain.  I have just re-read to booklet that we are given in Canada with first OFEV prescription and there is no mention or even a hint of joint and muscle pain.  Glenda Have you got a support group and a nurse assigned to y…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    Yes it is warmer here even if it has been wet.  We are 2 hours straight west of Orlando.

    Those deary winter days in Canada are what would drive me potty and as far as the cold is concerned i’m a coward.

    Hope it brightens up for you.

    Regards

    Bob

     

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    I had some experience with filing an appeal through OHIP.  One of the interesting things I found out is that all of their communications are sent via courier.  Also, at the hearing itself, which was via a conference call as I was in Florida, the Chairman or Moderator was a QC.  So they wouldn’t pay my claim but they could incur co…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    It is warmer down here in Florida but we have had heavy rain since about 2am on Thursday morning and straight line winds and a tornado south of us that damaged 80 mobile homes and took the roof off a detached home.  So not all is great in paradise.  Have  a very merry Christmas.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene

    Will write more later.  Just got to the house in Florida.  We don’t fly we drive.  Good uneventful trip.

    Later

    Bob

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    Following up on OHIP and Rehabilitation.

    The OHIP site is pretty specific on who they cover – seniors and those under 19, as well as those claiming under Workers Comp or under their Canadian auto insurance.  I know you aren’t under 19 and based on your picture I doubt you are a senior.  The site is less specific about who else t…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    You might be in NYC by now.

    Thank you for your detailed reply.  It was as I expected but I really don’t understand why OHIP wouldn’t have covered your rehab, despite the fact that you were not claiming through your Canadian auto insurer.  Did you question your family doctor about this and ask him for a referral to the rehab c…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 3 months ago

    Hi Charlene:

    I’ll respond to your total posting a little later but i’m intrigued about the rehabilitation costs you are incurring as a result of your accident.   I’m assuming you have hired a lawyer to fight your battle with the insurance company and any costs you are incurring now will be part of that settlement.  OHIP also covers re…[Read more]

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