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  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 months, 1 week ago

    Hi Thom:

    They won’t allow that here in Canada.  I think its a tremendously expensive waste of money.  We are approved here for OFEV under a special government program so it doesn’t actually cost individuals anything.  Nevertheless given the packaging of this product, unopened packages should be taken back by the Pharmacy and redistributed.  But…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 months, 2 weeks ago

    Hi Thom:

    Thanks for the info.  Can I ask where you are?  I’m in Canada.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 months, 2 weeks ago

    Hi Charlene:

    Thanks for your comments. California?  You get around.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 months, 3 weeks ago

    Dear Bob

    From another Bob.  I like your positive outlook.  I was diagnosed 8 years ago last February but I am very fortunate as I don’t exhibit the usual symptoms of shortness of breath etc.  Have been on OFEV for 2 years in June and apart from diarrea (see my post a little earlier today) I have had no problems.  I carry on a normal life inc…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 months, 3 weeks ago

    Hi Charlene:

    I had to scroll down today.  Sa La Vie.

    The diarrea won!   Battled this one for 18 months but it seemed to get more frequent and i was coming off OFEV for 6 days at a time every 6 weeks.  So Doc has taken me off for 3 weeks and will restart me at 100mg.  Now i have to dispose of a full one and a half months of 15omg capsules.  What…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 months ago

    @sarvpun

    Hi sarvpun, I echo everything Charlene has said.  In your fist posting you said your wife was taking both Esbriet and Ofev.  I know there has been some trials of this combination but the last i read was there was no significant advantage.  Also i have to assume that the side effects of taking both medications have to be greater.  Lik…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 months, 1 week ago

    @Charlene Marshall

    Good afternoon Charlene and everyone else who might be tuned in.  We all find ourselves in the middle of what many describe as a nightmare and given our respective underlying lung condition, we have to take extra caution.  As you know my wife and I winter in Florida and were not scheduled to return until April 25th.  However wh…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 months, 3 weeks ago

    Stay well everyone.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 6 months ago

    Carol:

    A correction to my earlier post.  I started OFEV in July 2018 not 2019.

    Bob

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 6 months ago

    Hi Carol:

    I too am Canadian and live about an hour and a half east of Toronto.  I’m 81 and was first diagnosed in 2012.  Compared with others on here I didn’t experience the usual breathing problems or other symptoms and as a result I didn’t go on OFEV until July 2019 at the 150mg dosage.  Could you comment on why you didn’t go on OFEV until re…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 4 months ago

    Hi Charlene:

    This is a test to see if my post posts…LOL

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 5 months ago

    Hi Charlene:

    Been away…actually up in Hamilton Ontario for a few days.  Used that new no frills airline Swoop owned by WestJet.  Went through the worst nightmare flights due to weather and maintenance problems.  Not all Swoops fault.  But Hamilton airport is a disaster for passengers.  Will never use it again if nothing changes.

     

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 5 months ago

    Hi Marie:

    I hope you get this. I received a friend request from you but i’ve been away and when I tried to acknowledge it, it had disappeared.  If you want to send it again i’ll be glad to accept.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 7 months ago

    Hi Charlene:

    We are here until the end of April.  Due back in Ontario on April 27th.

    Happy New Year to you too!

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 7 months ago

    Hi Glenda:

    Thank you for giving us your background information.  It is very helpful to know as there are usually differences on the handling of OFEV in different countries and I know there are definite differences between Canada and the US.  I was born in Belfast N.Ireland, went to live in London at age 16, got married to a gal from G…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 7 months ago

    Hi Charlene and Glenda:

    Rain long gone and today it is 80F and these temps will continue until about next Thursday when the next Front s due to drop us back down into the 60s for a few days.  That’s typical Florida winter weather, particularly in an El Nino year.

    Yes try Glucosomine.  My wife also uses it and swears by it.  By the way I spelt it…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 7 months ago

    Hi Charlene and Glenda:

    I copied the drug manufacturers name from the internet so that explains all that gobilty-gook before the name.  No I wasn’t drunk!!

    Bob

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 7 months ago

    Hi Charlene and Glenda:

    I have to admit you are both the only people I have heard of who have experienced joint and muscle pain.  I have just re-read to booklet that we are given in Canada with first OFEV prescription and there is no mention or even a hint of joint and muscle pain.  Glenda Have you got a support group and a nurse assigned to y…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 7 months ago

    Hi Charlene:

    Yes it is warmer here even if it has been wet.  We are 2 hours straight west of Orlando.

    Those deary winter days in Canada are what would drive me potty and as far as the cold is concerned i’m a coward.

    Hope it brightens up for you.

    Regards

    Bob

     

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