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  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 months, 3 weeks ago

    Hi Charlene:

    Want to wish you a Merry Christmas and a happier new year for all of us.  I’m scheduled for a PET Scan on Thursday, the result of an indecisive biopsy finding on a Node in my right lung.  It is very small but we need to define it and get on with any necessary treatment.  I feel fine and i’m very confident.  Stay safe.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 8 months, 3 weeks ago

    Steve:  They certainly have been silent but I still chose the wrong words.

     

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 8 months, 3 weeks ago

    Charlene:  Whew! I thought I might get banned!!  Thank you.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 8 months, 3 weeks ago

    Charlene:  My sincere apologies for definitely using the wrong choice of words.  My intent was only meant to refer to the low level of postings in recent months.  I’m so sorry for giving you and others the wrong impression.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 8 months, 3 weeks ago

    Charlene, the forum seems to be dying.

     

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    Hi Thom:

    They won’t allow that here in Canada.  I think its a tremendously expensive waste of money.  We are approved here for OFEV under a special government program so it doesn’t actually cost individuals anything.  Nevertheless given the packaging of this product, unopened packages should be taken back by the Pharmacy and redistributed.  But…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    Hi Thom:

    Thanks for the info.  Can I ask where you are?  I’m in Canada.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    Hi Charlene:

    Thanks for your comments. California?  You get around.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    Dear Bob

    From another Bob.  I like your positive outlook.  I was diagnosed 8 years ago last February but I am very fortunate as I don’t exhibit the usual symptoms of shortness of breath etc.  Have been on OFEV for 2 years in June and apart from diarrea (see my post a little earlier today) I have had no problems.  I carry on a normal life inc…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    Hi Charlene:

    I had to scroll down today.  Sa La Vie.

    The diarrea won!   Battled this one for 18 months but it seemed to get more frequent and i was coming off OFEV for 6 days at a time every 6 weeks.  So Doc has taken me off for 3 weeks and will restart me at 100mg.  Now i have to dispose of a full one and a half months of 15omg capsules.  What…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year ago

    @sarvpun

    Hi sarvpun, I echo everything Charlene has said.  In your fist posting you said your wife was taking both Esbriet and Ofev.  I know there has been some trials of this combination but the last i read was there was no significant advantage.  Also i have to assume that the side effects of taking both medications have to be greater.  Lik…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago

    @Charlene Marshall

    Good afternoon Charlene and everyone else who might be tuned in.  We all find ourselves in the middle of what many describe as a nightmare and given our respective underlying lung condition, we have to take extra caution.  As you know my wife and I winter in Florida and were not scheduled to return until April 25th.  However wh…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago

    Stay well everyone.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 2 months ago

    Carol:

    A correction to my earlier post.  I started OFEV in July 2018 not 2019.

    Bob

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 2 months ago

    Hi Carol:

    I too am Canadian and live about an hour and a half east of Toronto.  I’m 81 and was first diagnosed in 2012.  Compared with others on here I didn’t experience the usual breathing problems or other symptoms and as a result I didn’t go on OFEV until July 2019 at the 150mg dosage.  Could you comment on why you didn’t go on OFEV until re…[Read more]

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 1 month ago

    Hi Charlene:

    This is a test to see if my post posts…LOL

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 2 months ago

    Hi Charlene:

    Been away…actually up in Hamilton Ontario for a few days.  Used that new no frills airline Swoop owned by WestJet.  Went through the worst nightmare flights due to weather and maintenance problems.  Not all Swoops fault.  But Hamilton airport is a disaster for passengers.  Will never use it again if nothing changes.

     

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 2 months ago

    Hi Marie:

    I hope you get this. I received a friend request from you but i’ve been away and when I tried to acknowledge it, it had disappeared.  If you want to send it again i’ll be glad to accept.

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 4 months ago

    Hi Charlene:

    We are here until the end of April.  Due back in Ontario on April 27th.

    Happy New Year to you too!

  • Bob replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 4 months ago

    Hi Glenda:

    Thank you for giving us your background information.  It is very helpful to know as there are usually differences on the handling of OFEV in different countries and I know there are definite differences between Canada and the US.  I was born in Belfast N.Ireland, went to live in London at age 16, got married to a gal from G…[Read more]

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