Pulmonary Fibrosis News Forums | Brenda | Activity https://pulmonaryfibrosisnews.com/forums/members/brendacolvin/activity/ Activity feed for Brenda. Fri, 24 Apr 2026 21:47:13 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 cc157042b93c3c25ad78caf0f7d1ecc6 Brenda replied to the discussion Jascayd & Back Pain in the forum Jascayd (nerandomilast) https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-back-pain/#post-39409 Fri, 03 Apr 2026 20:57:31 -0500 Reply to Jascayd & Back Pain

Hi, I take Jascayd and Ofev. Been on both for about 2 months. So far no side effects. Not even diarrhea or nausea. Have had no back pain at all. We never know how we will react to these drugs. Hoping the 2 together will help. Tomorrow could be entirely different. Brenda

]]> 77e4269ea7c378aa4067a8ae01991290 Brenda replied to the discussion Jascayd and Ofev in the forum Jascayd (nerandomilast) https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-and-ofev/#post-39082 Sat, 13 Dec 2025 12:55:07 -0600 Reply to Jascayd and Ofev

I have been on Jascayde now for a month. I take it with 100 mg Ofev. I take them together 12 hours apart. Have had some diarrhea but controllable.

]]> f1ad3a3bafd809fcc82c348e1d7345df Brenda replied to the discussion Ofev and Jascayd together in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-and-jascayd-together/#post-39057 Tue, 02 Dec 2025 22:16:05 -0600 Reply to Ofev and Jascayd together

Hi, Brenda Colvin. I am taking Ofev 100mg 2 times daily plus Jascayde. Been on Jascayde 3 weeks. So far not bad. A little diarrhea but nothing I can’t deal with. Hoping it doesn’t get any worse.

]]> 6f1e49d3b943cb06f1cbd66bd038b60e Brenda replied to the discussion When should you start antifibrotics? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/when-should-you-start-antifibrotics/#post-32188 Tue, 24 May 2022 21:49:43 -0500 Reply to When should you start antifibrotics?

Hi, Brenda Colvin. I live in Florida and was diagnosed with IPF little over 2 years ago. I am on no meds yet. Just had CT scan and full blood work done 2 weeks ago. My Pulmonologist said no progression.I still have a very full life. I play golf and walk and still do all my housework. I have an occasional cough with phlegm sometimes.… Read more

]]> 5439d46c3e4039edbd7935e3003b6004 Brenda replied to the discussion Wrestling with the End Stage of Pulmonary Fibrosis in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/wrestling-end-stage-pulmonary-fibrosis/#post-31727 Tue, 19 Apr 2022 20:40:04 -0500 Reply to Wrestling with the End Stage of Pulmonary Fibrosis

Reading these comments have been very informative. I was diagnosed 2 years ago. No medication as of yet but going for CT and extensive blood work. Pulmonologist appt. 17th of May. I am a Christian and I know God has a plan for me. Whatever comes I know he will see me through. But I agree no one wants to die gasping for breath. Hopefully all… Read more

]]> 2068b0b0134f67ac6631597f205645e6 Brenda replied to the discussion Newby in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/newby/#post-31005 Tue, 08 Feb 2022 21:51:35 -0600 Reply to Newby

Hi Gail,I was diagnosed with IPF 2 years ago snd I’m still not on medication. I have had 2 CT scans. But last one showed no progression. Only have trouble breathing sometimes if I walk really fast or going up a hill. Cough in the mornings sometimes but have never been prescribed medication. I go back in April and will see what pulmonologist has… Read more

]]> 6d62624529f749fd1ba7cd79ba84d553 Brenda replied to the discussion Esbriet - Insurance approval in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/esbriet-insurance-approval/#post-30817 Thu, 20 Jan 2022 22:05:56 -0600 Reply to Esbriet - Insurance approval

Brenda Colvin. I read an article saying Esbriet and Ofev are not cost effective in the U.S. is that true or do most of you live out of the states. I know it’s expensive but didn’t we wouldn’t have access to it here. I live in Florida. Not on medication yet but want to know options when time comes.

]]> 0b6b2b62d85244175e8062570946818e Brenda replied to the discussion Happy Holidays! in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/happy-holidays/#post-30636 Tue, 21 Dec 2021 20:34:48 -0600 Reply to Happy Holidays!

Merry Christmas Charlene! I do plan to visit my daughter. I have been vaccinated snd boosted. Still taking precautions and wearing mask. I hope everyone has a happy holiday! Take care and be safe.

 

]]> 0cc8f3bea511d92bac6cc4f67572091c Brenda replied to the discussion Chronic Illness Gift Guide in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/chronic-illness-gift-guide/#post-30624 Thu, 16 Dec 2021 20:22:10 -0600 Reply to Chronic Illness Gift Guide

David not sure where you live but the Binax kits here in Florida are $14 at Sams Club

]]> 6872fdc369d9a3bfc26a68904f16fa14 Brenda replied to the discussion Inhaler Use for Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/inhaler-use-for-pulmonary-fibrosis/#post-30610 Tue, 14 Dec 2021 23:27:08 -0600 Reply to Inhaler Use for Pulmonary Fibrosis

Charlene I am so thankful we have this forum to try and stay on top of new things. I am my still not on medication. I see my pulmonologist in April 2022. Guess we will go from there.

]]> c5815745d4872ef2babe28f7cac16606 Brenda replied to the discussion Cardiopulmonary exercise (CPET) in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/cardiopulmonary-exercise-cpet/#post-30552 Thu, 02 Dec 2021 22:20:25 -0600 Reply to Cardiopulmonary exercise (CPET)

I had the CT scan and the breathing test done before my diagnosis. I live in Florida and was diagnosed 2 yrs ago.

]]> debc484419b961e4e440db837e857f6c Brenda replied to the discussion Jill Tanner ♥️ in the forum In Loving Memory https://pulmonaryfibrosisnews.com/forums/forums/topic/jill-tanner-%e2%99%a5%ef%b8%8f/#post-30409 Wed, 10 Nov 2021 12:27:11 -0600 Reply to Jill Tanner ♥️

Rest In Peace Jill

]]> 365afa306772a5bc52bbfe7fd012933f Brenda replied to the discussion Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-nasal-drip-another-ailment-to-deal-with/#post-30238 Wed, 20 Oct 2021 00:27:55 -0500 Reply to Post-nasal Drip: Another Ailment to Deal With

Brenda Colvin. I too have a problem with post nasal drip. Diagnosed two years ago but on no medication as of yet.I go through tissues like crazy. Have tried Claritin and Allegra. They don’t work very well. Will try Flonase. Have a morning cough sometimes with lots of phlegm. So appreciate reading everyone’s comments. We know we are not in this alone.

]]> 568e92de5301354e276aa5028dd580f4 Brenda posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/29920/#acomment-29956 Thu, 07 Oct 2021 14:04:41 -0500 Thanks Charlene. I was diagnosed with IPF 2 yrs ago this month. Still on no medication. Doing okay but still not sure what to expect. Really have lots of anxiety. Not sure if anxiety makes it a little harder to breathe or at times just get out of breath a little. Especially playing golf any going uphill. Not scheduled to see pulmonologist… Read more

In reply to - Brenda became a registered member ]]> e3ee8526c383e72c074a5ae5689899c4 Brenda became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/29920/ Wed, 06 Oct 2021 14:33:16 -0500 3