[Brent Fain]

My unmedical opinion is that IPF is a very individual situation! It acts differently for each person! Diagnosed ILD Nov 2016, confirmed IPF July 2017. So I just passed 7 years. I have a friend that was Diagnosed 2 years after me is now on new lungs for 3 years. Duke says that I breath good due to being in shape when diagnosed. I have 70 percent lung capacity but they say my lungs operate at 80 efficiency due to my physical regiment. I go to the gym 4 days a week and it is 1.75 to 2 hours workout without oxygen! I have never had a cough until I got covid this November! I was put on OFEV in 2017 at 150mg twice a day. It made me sick in a week. It was reduced to 100 mg twice a day and I could go 6 weeks before I would get queasy! It also reeked havoc on my acid reflux! This past winter I went to Florida and decided not to take OFEV while camping for 3 months! Oops, I did not start it back when I returned home. Went to Duke last month and my breathing and pfts were flat line from last November! Told the transplant doctor that I hadn’t take OFEV for a year. He said that it didn’t hurt me, so I don’t take anymore! Also my reflux rwally improved and I dropped the Dexalant for my acid reflux and it was approved by the doctor. I think the key for me is that I work out religiously, eat good and on the protein side, take vitamins and maintain a healthy weight. I also think genetics plays into the scenario! I am 71, 5’10”, and weigh 175 lbs. I hope this gives you some insight and remember that IPF is different for each of us! God bless and Merry Christmas!

[Brent Fain]

I was diagnosed November 2016 with ILD.  IPF was confirmed with a biopsy in July 2017.  I seem to be holding my own.  Doc says that it is due to me being in great shape.  I have not experienced problems with fumes but I do tried to avoid them.  All of this came on me in  few months after a total knee replacement.  I am curious, what antiobiotic caused issues?  I hope you get better or stay steady.  Thanks for  your help.