Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Bruce F.

Home Members Bruce F.
show less show more
Profile picture of Bruce F.

@bruce

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Bruce F.

    Bruce F. replied to the topic Travel and Telling siblings and children after diagnosis of f-IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 week ago

    Hi Lynne,

    I am very sorry to hear about your diagnosis.

    I have asked my pulmonologist about genetic testing, and there is a test that will identify the genetic markers associated with IPF.  The lab that performs the test is in Canada, and we agreed to return to this topic if my young adult children want to know if they have the genetic…[Read more]

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Depression in the forum Using Our Forums 1 month ago

    Hi Stella—I am not a physician or a psychologist, but if I can share an insight or two:

    – if you are already suffering from or prone to depression, I can only imagine what the diagnosis of IPF or other illness which requires treatment with OFEV would exacerbate the depression.  Everyone lives with the abstract prospect of death, but the IPF di…[Read more]

  • Profile picture of Bruce F.

    Bruce F. replied to the topic travel while on ofev in the forum Ofev (Nintedanib) 2 months, 2 weeks ago

    Thank you, Renee!  My doctor has also indicated that missing OFEV for me in order to travel or for special occasions is not something I should worry about.  I have no underlying conditions, and I am young-ish at 59, and there is a lot I want to do and need to do that are not compatible with my usual 2x 150 mg. of OFEV each day.

    I am a…[Read more]

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Diagnosed with IPF – What can we expect? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago

    Thank you for those kind words, Christie.  I posted again today for the first time in a while, and it is nice to know that you found it helpful.  We are all learning from each other, which helps me feel better.

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Questions about Ofev in the forum Using Our Forums 2 months, 2 weeks ago

    Hi Maria—

    Sorry to hear  about your diagnosis, but glad to see you reaching out.

    Edible cannabis has helped me with the constant nausea and loss of appetite.

    I have been on OFEV 150 mg twice daily for 10 months after being diagnosed with IPF.  I am otherwise healthy and in my late fifties.

    My experience with OFEV rhymes with much I’ve seen…[Read more]

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Diagnosed with IPF – What can we expect? in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 3 weeks ago

    1. Mike,

    I would encourage you to speak with your pulmonologist, your internist, their nursing staff, and perhaps with a hospice team if you want to learn more about the very end stages of the disease.

    I had the experience of watching my father and  my grandmother die of IPF, and now I have been diagnosed as well.  I am not a medical p…[Read more]

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Diagnosed with IPF – What can we expect? in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 3 weeks ago

    Mike,

    I would encourage you to speak with your pulmonologist, your internist, their nursing staff, and perhaps with a hospice team if you want to learn more about the very end stages of the disease.

    I had the experience of watching my father and  my grandmother die of IPF, and now I have been diagnosed as well.  I am not a medical person nor a p…[Read more]

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 7 months ago

    Thank you!  That is very helpful.  I struggle with the morning dose and may ask about moving to a 100/150 routine each day.  Good luck to one and all as we navigate our way through the days!

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Appetite in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 1 week ago

    Hi everyone—I am new to the illness, the medicine, and to this group.  I am working hard to manage appropriate food intake while on OFEV.

    I hope there is an active discussion board about nutrition here; I will look and report back to this thread!

    Best wishes to all of you!

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Ernie Kully ♥️ in the forum In Loving Memory 8 months, 1 week ago

    Sorry to hear of your loss.

    When the time feels right, I hope you will share something if Ernie Kully’s life with the board.

    Be well,

     

    JB Fort

  • Profile picture of Bruce F.

    Bruce F. replied to the topic Is ipf genetic? in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 1 week ago

    Here  is an article on familial IPF that covers some of the questions raised on this thread.

    I was diagnosed with IPF this spring.  As the son and grandson of IPF patients, and as the father of young adult children who May of may not have a genetic predisposition to develop IPF at some point, I have asked my pulmonologist about genetic t…[Read more]

  • Profile picture of Bruce F.

    Bruce F. became a registered member 10 months, 2 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 10 months, 2 weeks ago

      Welcome to the PF forums Bruce, we’re glad you found us.

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

Profile picture of Walt andersen
Profile picture of George Richard

Newest Topics

  • Telomere length and specific genes associated with IPF: by James Rollins
  • An interesting book by Scott Robertson
  • Travel and Telling siblings and children after diagnosis of f-IPF by Lynn Maxim
  • Is this site still active? by Ruth Edwards
  • Swollen Belly IPF by Ina Enslin

Recent Replies

  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate

Members

Newest | Active | Popular
  • Profile picture of Walt andersen
    Walt andersen
    Active 28 seconds ago
  • Profile picture of George Richard
    George Richard
    Active 10 minutes ago
  • Profile picture of Laurie
    Laurie
    Active 1 hour, 16 minutes ago
  • Profile picture of Luis Pernia
    Luis Pernia
    Active 1 hour, 26 minutes ago
  • Profile picture of Mindy
    Mindy
    Active 1 hour, 46 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen