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@bryan-osullivan
Hello everyone , I have been reading this page for over a year and finally decided to join in. I know it seems hard to believe that I have had ILD for as long as I have , but it’s true., going on year 44. In the early years I was put in an Iron Lung machine. Thant didn’t work as expected. I have actually stopped breathing on three occasions. […] View
Biography
- Name
Bryan O'Sullivan
- Year of Birth
March 14 1951
- Gender
- Location
Whyvale Ontario, Canada
- Relationship
- Short Bio
I have ILD most of my life . They first thought I had IPF but I out lived that, then the doctors settled on ILD. My new doctor says I have NSIP ( fibrosis ) version.
- Type of Diagnosis
- Treatment / Medical Facility
Soldires Memorial Hospital
- Current medication regimen
Imuran and Triamcinolone
- Lung transplantation status
- Supplemental Oxygen
- Best advice for PF symptom management
stay active as much as you can. I volunteer at many places.
- Are you currently taking an anti-fibrotic medication?
- How did you find us?
- How long have you or the person that you are caring for had PF?
Going on 43 years . Hard to believe
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