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  • Carol

    Member
    January 19, 2023 at 2:17 pm in reply to: Life span

    I received the same time frame over 4 years ago.  Then, I changed doctors and it is a whole different story.  As stated by other, the 3-5 is based upon old data.  My doctor confirmed this information.  My tests have all remained stable and not on oxygen.  Only Ofev.  My doctor told me not to worry about time.  Research is ongoing.  Chin up.

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