Forum Replies Created

  • Carol Rush

    Member
    July 23, 2023 at 10:02 am in reply to: NAC supplements for IPF mentioned in studies.

    What is NAC and what is the difference be PF and IPF

  • Carol Rush

    Member
    July 24, 2023 at 10:16 am in reply to: How quickly can pulmonary fibrosis progress?

    I have read that perifidone is the preferred treatment for UIP. I don’t know too much about it and I have been concerned about the side effects.I coughed a lot recovering from pneumonia and RSV but now the cough is only occasional. Does the cough come on quickly and is it constant? I have so many questions and I welcome reading other people’s journeys to see what to expect. Are you taking any supplements? How soon after diagnosis were you in oxygen? I was on until January but now off. I don’t think there is a support group here. Any information is appreciated! Thank you

  • Carol Rush

    Member
    July 24, 2023 at 10:16 am in reply to: How quickly can pulmonary fibrosis progress?

    I have read that perifidone is the preferred treatment for UIP. I don’t know too much about it and I have been concerned about the side effects.I coughed a lot recovering from pneumonia and RSV but now the cough is only occasional. Does the cough come on quickly and is it constant? I have so many questions and I welcome reading other people’s journeys to see what to expect. Are you taking any supplements? How soon after diagnosis were you in oxygen? I was on until January but now off. I don’t think there is a support group here. Any information is appreciated! Thank you

  • Carol Rush

    Member
    July 23, 2023 at 10:02 am in reply to: ILD PF and terminal prognosis

    I was diagnosed with Usual Interstitial Pneumonia. I haven’t seen any information on that and also IPF.  The doctor mentioned OLEV but the side effects look bad and at this point I am not coughing and my oxygen is good but energy levels down.

  • Carol Rush

    Member
    July 23, 2023 at 10:02 am in reply to: ILD PF and terminal prognosis

    is having fibrosis in the lung bases worse?

  • Carol Rush

    Member
    July 23, 2023 at 10:02 am in reply to: How quickly can pulmonary fibrosis progress?

    What is NAC? Also the other supplements you mentioned. I take zinc, d3 and Q ten