Biography

diagnosed IPF 2015 , 3 to 5 years statistics I am still here. OFEV took its toll on me Went off it after 4 years, May 2020. Months later I’m on Espriet 9 pills a day, reactions minimal but annoying. I’m 67, Mom, Grandmother, living my life anyway, I moved from PA to SC last June 2020 although I’m alone there, I have a new set of friends I’ve met but need to connect now with those that have the disease bc I need support of those that understand and care, many DO NOT get it nor understand it. We learn to live with it. I’m now in stage 2. I am on oxygen now. Would like to hear from you. [email protected]