Biography

Name

Catherine Leonard

Nickname

catherine-leonard

Year of Birth

1950

Gender

Female

Location

Southern California

Relationship

Patient

Short Bio

As of December 10th, doctor confirmed I have ILD plus a cyst determined by a CT-Scan.  Am now waiting for follow-up CT to see if cyst was a bacterial infection and has been reduced by a 10 day course of ABX Levoflaxacin.  My earlier symptoms began as far back as 2013; the ILD has not been officially ‘typed’ and for now the pulmonary doc has used the term IPF – to describe my illness.  (I suspect a genetic link, but for now that’s unproven and not a primary concern.)

Type of Diagnosis

IPF

Treatment / Medical Facility

Kaiser – Baldwin Park

Current medication regimen

Alvesco – Ciclesonide / aerosol inhaler

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

I’m in no position to give advice, beyond what I’ve found in many posts, regarding: keeping a positive attitude, be proactive, and keep as active as possible.

I’m not sure how that translates to how much RnR I should allow myself when I am just plain tired!  I play it by ear or breath.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Tough question: Officially the answer is 3 months, unofficially: five years or more.

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