- Year of Birth
- Short Bio
As of December 10th, doctor confirmed I have ILD plus a cyst determined by a CT-Scan. Am now waiting for follow-up CT to see if cyst was a bacterial infection and has been reduced by a 10 day course of ABX Levoflaxacin. My earlier symptoms began as far back as 2013; the ILD has not been officially ‘typed’ and for now the pulmonary doc has used the term IPF – to describe my illness. (I suspect a genetic link, but for now that’s unproven and not a primary concern.)
- Type of Diagnosis
- Treatment / Medical Facility
Kaiser – Baldwin Park
- Current medication regimen
Alvesco – Ciclesonide / aerosol inhaler
- Lung transplantation status
- Supplemental Oxygen
- Best advice for PF symptom management
I’m in no position to give advice, beyond what I’ve found in many posts, regarding: keeping a positive attitude, be proactive, and keep as active as possible.
I’m not sure how that translates to how much RnR I should allow myself when I am just plain tired! I play it by ear or breath.
- Are you currently taking an anti-fibrotic medication?
- How did you find us?
- How long have you or the person that you are caring for had PF?
Tough question: Officially the answer is 3 months, unofficially: five years or more.