Forum Replies Created

  • Charlene

    Member
    August 9, 2023 at 9:48 am in reply to: Confused and scared

    Hi Amy, I was diagnosed with IPF a few months ago. I had been to a pulmonologist because of shortness of breath. She sent me for a ct and that’s when I found out. The nurse was also the one that called me to tell me I had this disease. I also thought they should have had me come in to discuss my options. I have been back to this dr several times since the diagnosis and have not seen the dr just her PA. I am going to change dr as of this month. I am on OFEV and so far I’m doing ok and not any severe side effects. Hopefully this new dr will do another ct scan to see how things are going.
    Praying you get better news from the pulmonologist.
    Charlene Schiller