Forum Replies Created

Page 2 of 2
  • anonymous

    Member
    December 13, 2022 at 3:54 pm in reply to: Saw PF on xray now what

    Thanks Mike,  happy for you.  🙂    Did you say Diet and exercise? This disease is more horrible than I thought!  just kidding!  It’s starting to become apparent to me that outcomes are VERY variable with this.  I can only hope my case doesn’t progress fast, that if/when it does, down the line, there’s a possible lung transplant option, and also my doc said PF is under research (as is I’m sure research going into making transplants more successful and last even longer).

    Might just get the covid booster, going to look into how good a match the current one is for current variants. My chest sorta bothering me hence the light dry cough, I wonder if thats something should be looked at by my Pulmo or is that normal for PF?   (Nothings changed since CT/LFTs and pulmo visit just weeks ago which obviously included him listening). I just wonder if PF normally always feels like a slight discomfort (like I said, as if I breathed dust or smoke, when I havent)?

     

     

  • anonymous

    Member
    December 13, 2022 at 1:49 pm in reply to: Saw PF on xray now what

    Interesting.  What is RIPF?  Would I benefit from knowing the list of meds that are triggers?

  • anonymous

    Member
    December 13, 2022 at 1:04 am in reply to: Saw PF on xray now what

    thanks guys very helpful… hoping for the least bad thing here but we’ll see. my chest does always feel “off” like as if I breathed smoke or something, which is new. the light cough doesnt bother me much. I’ve had bouts of more serious coughing that lasted months going back all my adult life and even in high school, but then it would go away for a long time. Very used to that and it’s very light lately. They called that “reactive airways” and more a nuisance than anything.  but obviously seeing this fibrosis is way different situation now.

    I am wearing 3M N95 respirator when doing anything involving light dust for example today when vacuuming the house, and a full respirator at all times when in the shop. HEPA room filter where I sleep as well (got that when the Covid pandemic started). Trying to protect from irritants.

    One thing I am debating is whether to get a covid booster. I got the flu vax. but I found out there is a new variant and was told the moderna booster is a low protection match for that. I’m slightly suspicious of these mrna vaxes anyway simply because they are so new. (Although that’s what I got last fall)

     

Page 2 of 2