Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Chuck Pefley

Home Members Chuck Pefley
show less show more
Profile picture of Chuck Pefley

@chuck-pefley

  • Activity
  • Profile
  • Friends 2
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Andrew (Randy) Hicks

    Andrew (Randy) Hicks and Profile picture of Chuck PefleyChuck Pefley are now friends 3 years, 4 months ago

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Port-a-Cath Use in Patients with Pulmonary Fibrosis in the forum Upcoming Medical Appointments: Q&As 3 years, 5 months ago

    Happy New Year, Charlene!

    I had a port-a-cath placed in January 2018 for blood work and chemo treatments. Only local anesthesia was used – not a general. I just had the port removed last month after almost 2 full years of intermittent access. No issues with infection or other nasties. Be sure to ask for lidocaine just prior to each access. Happy…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic The Production of C02 From Various Foods We Consume in the forum Healthy Recipe Sharing 3 years, 5 months ago

    Hi Charlene,

    Happy Holidays!!!

    I’m very happy you were able to hear (and hopefully, meet) Noah Greenspan and be introduced to his Pulmonary Wellness Foundation dot Org. Noah’s an amazing fount of knowledge, inspiration, and energy … all directed toward us, the pulmonary and/or cardio-pulmonary disease afflicted community!

    I can attest…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Perks To Using Supplemental Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 10 months ago

    Hi Charlene,
    Needing to use supplemental O2 does give me what I consider to be a perk. O2 use automatically qualifies for a disabled parking in the State of Washington. I think the “perk” idea is perhaps a matter of perspective. Preferential seating at the theater is another plus.

    But PLEASE, don’t think for a minute that I wouldn’t rather pass…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Hair thinning: a side effect of Ofev? in the forum Ofev (Nintedanib) 3 years, 10 months ago

    Hi Charlene,

    Aside from “normal” male-pattern hair loss I have experienced changes in what’s left of my hair. Thinning as well as a much finer texture. Cause? That’s the big question, isn’t it? Until running across this comment thread I simply assumed my hair changes were the result of the heavy chemo treatments I had last year which did result…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Book Club in the forum Hobbies & Projects 4 years, 1 month ago

    Hi Katie ( @katiebagshawe )

    Thanks for your info that the Galbraith Cormoran Stryke books have been serialized. I’ll have to see if the series is available online. Loved the books!

    Regarding eReaders, my first was the Kindle Fire when it first came on the market several years ago. I shied away from the dedicated eReader in favor of a more…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Book Club in the forum Hobbies & Projects 4 years, 1 month ago

    Katie, Charlene, Roger, Jean-Michael,

    I love this thread! Thanks for starting it @katiebagshawe,

    I’ve always been a rabid reader but since being diagnosed with both IPF and lymphoma I find I’ve become even more voracious. Most of my reading is on my iPad with the Kindle app. A majority of my books come free via…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Drinking Wine with Pulmonary Fibrosis. in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 4 years, 3 months ago

    Hi Charlene,

    I received my IPF diagnosis July 2016 and then in January 2018 a rare & nasty lymphoma diagnosis. The first 6 months of 2018 were spent in and out of the hospital enduring chemo treatments. Not fun. But, I achieved remission in June 2018 but was cautioned that “remission would likely be counted in months, not years”.

    My outlook on…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley and Profile picture of Charlene MarshallCharlene Marshall are now friends 4 years, 6 months ago

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Skin Irritations Caused by Oxygen Cannulas. in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 6 months ago

    Hi again, Charlene,

    I’ve not noticed any odor related to the heating of the plastic tubing.

    I should mention as a disclaimer that plastic tubing is going to become stiff when it gets cold. That’s simply the nature of the beast. However, that said, I’ve found that the continuous oxygen flow via my concentrator tends to make the tubing stiffer…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Skin Irritations Caused by Oxygen Cannulas. in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 6 months ago

    Hi Charlene,

    Just a cautionary note when warming your cannula hose in the oven … temperature and time in oven are important. Our oven has a “keep warm” setting that is limited to 170ºf . I’ll run it up to that temperature and then simply turn off the oven before placing the hose in the oven. I also put the hose on a cookie sheet before putting…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley replied to the topic Skin Irritations Caused by Oxygen Cannulas. in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 6 months ago

    Hi Charlene,

    I was diagnosed with IPF in July 2016 and managed pretty well until late August 2018 when I experienced an acute exacerbation due in large part to fires in the Pacific NW. (I live in Seattle, by the way.) In terms of oxygen use in cold weather I have no experience … so far. However, I do have a couple of tips that may be of help to…[Read more]

  • Profile picture of Chuck Pefley

    Chuck Pefley became a registered member 4 years, 9 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 9 months ago

      Welcome to the PF forums Chuck. Thanks for joining us!

Profile Photo Kathleen Hagan Profile Photo Jerry

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Telomere length and specific genes associated with IPF: by James Rollins
  • An interesting book by Scott Robertson
  • Travel and Telling siblings and children after diagnosis of f-IPF by Lynn Maxim
  • Is this site still active? by Ruth Edwards
  • Swollen Belly IPF by Ina Enslin

Recent Replies

  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate
  • Is this site still active?

Members

Newest | Active | Popular
  • Profile picture of Sam123
    Sam123
    Active 1 hour, 20 minutes ago
  • Profile picture of John Baldino
    John Baldino
    Active 1 hour, 33 minutes ago
  • Profile picture of Karen Rachal
    Karen Rachal
    Active 1 hour, 37 minutes ago
  • Profile picture of Mindy
    Mindy
    Active 1 hour, 57 minutes ago
  • Profile picture of Walt andersen
    Walt andersen
    Active 2 hours, 17 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen