Biography

Name

Crystal M
Nickname

crystal-m
Year of Birth

03/06/1971
Gender

Male
Location

Hawaii
Relationship

Patient
Short Bio

Hi I am 48-years old diagnosed w/Dermatomyocitis and IPF since 2013.  Currently in Chicago for a double lung transplant, and have been on the wait list for one year.
Type of Diagnosis

IPF
Treatment / Medical Facility

Loyola University Medical Center
Current medication regimen

Tacro, Cellcept, Prednisone, Gabapentin, Plaquenil, Benzonotate, Vitamins
Lung transplantation status

eligible
Supplemental Oxygen

yes
Best advice for PF symptom management

Trying different meds from your doc may take some time to see any difference with symptoms never give up and keep striving forward.
Are you currently taking an anti-fibrotic medication?

yes
How did you find us?

Facebook
How long have you or the person that you are caring for had PF?

6 years
Privacy Policy and Terms of Use

I agree

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