Forum Replies Created

  • James christenberry

    Member
    April 18, 2022 at 12:28 pm in reply to: Esbriet – Insurance approval

    I am in the same boat as William Kracke. My first year on it ran out last month and it took my Doc sending in the info to Express scripts  X3 before they accepted and approved it.  Plus every month I have to call in to refill it, so they have proof of life before they send out another 30 days, all my other meds from them are on a 90 day auto refill.

     

  • James christenberry

    Member
    March 11, 2022 at 9:23 am in reply to: Deep-breathing exercises

    I’ve been doing  the three that came out in a Chinese paper from last year, two of them are Yoga-like stretches and have really seemed to help me.  Only takes a few minutes a day and I use a 3lb weight now with A & B.   https://pubmed.ncbi.nlm.nih.gov/34353031/

  • James christenberry

    Member
    October 20, 2021 at 2:00 pm in reply to: Vaccinated PF people and COVID 19

    Two weeks to the day of getting the  Pizer booster & Flu shot, my wife( her booster was a week later) and I both tested positive and had no symptoms for 3 days. We were exposed by 15 month family member, 2- 4 days pre-test.

    Esbriet  is the only  IPF associated  drug I am taking  other than 2 lpm  O2 at night and with excursion.   Our GP got us the monoclonal anti-bodies infusion 6 days in and the following day I had what most would call”Flu” like symptoms with a 99f fever that lasted only 3 hours after taking Tylenol.  The whole time all I had was a runny nose and our SPO2 stayed above 95 on room air. Wife also had very light “flu symptoms” but with head ache & head pressure with 100 temp for 3 days.  Today is the 12th day since testing positive and we have both been normal for the last 5 days. My advice from Pulmonologist  was “I should be fine being fully Vax’d, but to stay up and about and practice breathing exercises and  contact him if SPO2 dropped”. I fully believe the vax kept us from having a worse illness.  While we were getting the anti-bodies infusion our nurse stated that if we had been  immunecompromised we  could have gotten it without being COVID positive.