David Swain
Forum Replies Created
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Hi Kiran ( @kiran ) , Of course I don’t mind you asking. I’m happy to help in any way possible. My pulmonologist seems happy with any alternative therapies. His attitude is that if it’s helpful then go for it.
At present I am not on either OLEF or Esbriet. My laser therapy is on the schedule which K laser sent to my chiropractor. I’m paying £25 per treatment by booing a number of treatments in advance. Normal rate is £28, which is very reasonable. The protocol is very similar to Dr Andy Hall’s protocol. I haven’t tried the laser Accupuncture yet.
The only noticeable change after 8 laser is less coughing. I’m not too sure about O2 levels yet, but it’s early days, so I will press on with the laser.
Hope this helps – David
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Hi Steve, @steve-Dragoo.
It’s good to hear from you again. I’m trying to take 360SU of serrapeptase per day, but this is difficult to remember to take it between meals. So, I guess I mostly take 240. I omitted to say that I’ve been taking Nattokinase as long as the Serra, as this was the combination, which I believe cured my angina. My heart rate is very low, usually 50 to 60, but somtimes dropping to 46. May I ask why you take the B complex?
I try and walk 10,000 steps/ 4 miles a day and/or go to the gym. However this is proving difficult at present, due to the time needed to travel for my laser.
Until recently I’ve had lots of energy and endurance, but this isn’t so good now. I particularly struggle when walking uphill, though many of my friends would not notice it, as I’ve always been faster than them. My O2 after walking 500 steps uphill can go as low as 75. I hope it will improve with the laser, though this hasn’t happened yet. David
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Hi Kiran. I forgot to say that I’ve taken Serrapeptase for 15+ years to help with angina. I no longer suffer from angina and taking the serrapeptase may have slowed the progression of IPF, which due to a persistent cough, I suspect I’ve had for a long time, before it was diagnosed in March 2018. As I said before my cough has now reduced due to the Laser therapy. David
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Hi Kiran. I live in Exeter and have started laser with Dr Julien Barker, South Street Chiropractors, South Molton, Devon.
I’ve had 8 treatments so far.
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Hi Loraine. Thanks for posting the links for the Egyptian Study. I am now reading the 3rd one worked well. For the information of others, this is the link for the Egyptian Study, showing the lung acupressure points.
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Thanks John. The only study I can find is for 30 participants with COPD (not IPF) and uses 5-30W lasers. So, not only is this a different disease, but the treatment is completely different to the class IV 10watt laser treatment being discussed in this column. Maybe I haven’t found the Study you refer to which you said included 200 participants. Anyway, thanks for your help, but I wonder if those Egyptian studies are relevant to us, who suffer from IPF.
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Hi everyone. Thanks to everyone who has contributed, especially Dr Hall. I’ve been following the discussion and have now had 7 k laser treatments. I’ll post the results after 10 treatments. Meanwhile, can someone please post a link to the Egyptian Study as I would like to read it. I’m wondering whether to include the acupuncture points in my treatment schedule. It would also be interesting to hear @drandyhall view on this. Thanks in anticipation.
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Hi Charlene,
It’s always nice to hear from you and particularly that you are doing OK. You seem to have a really busy life considering that you are working. Long may it continue!
No, the flight wasn’t delayed. Everything uneventful and on time in the respect. The complimentary night in a 5* hotel in Seoul was just part of the back to back flight deal from Korean Air. We actually flew business class with a special deal. This was a big help and I would highly recommend if for long haul flights if funds allow.
Ive had just 6 laser therapy treatments, over 2 weeks. My cough has reduced and I seem to have more energy, although this my be due to going to the gym 3 times a week and walking 3 miles a day, other days. O2 levels may also be marginally higher, but the only comparable measures ar my resting O2. Its early days yet.
For me, life is very full; particularly with visits to the gym and the laser treatments. Also, visiting friends and church activities are very important. As you will gather, I’m not much incapacitated and the only time I’m aware that I have IPF is walking uphill.
Take care of yourself Charlene. Thanks for all you do for the forum.
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Hi Charlene,
Yes, we had a lovely time with our New Zealand Family. It was so nice to stay for two full months to really get to know our two lovely granddaughters. We are hoping to go again in a years time, God Willing. I’m happy to say that the long flights back were uneventful and I didn’t feel any ill effects, even though my O2 levels were in the 80s. I’m not on oxygen, but my body seems to be able to function normally at reduced levels. Maybe it’s due to the Mitochondrial therapy supplements I take. The journey was helped by a nights stopover in a hotel in Seoul, compliments of Korean Air. Also, flighing Business Class was a big help. This is expensive , but we found a special offer.
I’m excited to have started Laser Therapy and very positive about the results thanks to Andy, John Styles @johnstyles and the others who have reported.
I do hope thinks are OK with you. You will be getting excited about your upcoming visit to Hawaii. A holiday does us all good!
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Hello @drandyhall.
As you know this discussion about Laser Therapy started while I was on holiday in New Zealand and with your help I was able to find a chiropractic doctor near my home in England and have started treatments since returning. So far I have had 4 treatments using a protocol provided by K Laser. The frequencies are marginally different to those suggested by yourself. They are 660, 800, 905 & 970nm, with a pulse frequency time frame of 45sec at 10W. I receive 4 minutes each side front and back (total 16 mins). Please can you tell me if this is acceptible, or should I request a change?
I saw my pulmonologist last Friday and sadly my test results showed a slight deterioration, although I feel pretty much the same. I will see him again in 4 months. The test measurements will give me a baseline for the laser treatment, as I have had only 4 treatments before the tests. I am pleased to say that my pulmonologist is quite open to alternative therapies and said he would read the copy of your paper, which I gave him. His main concern was that it was safe and I wouldn’t be harmed by the radiation.
Thanks for all your help and maybe others will be interested in your reply.
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Hi Charlene. Thanks for your reply about my profile picture. Unfortunately I still haven’t been successful. Following all your steps until the final save; there is no save button to finalise the change.
I’m so happy to hear you’ve made your booking to Hawaii. Now you are committed, you can start the exciting part of planning in detail. I’d love to go to Hawaii, but all our future long trips will be to NZ.
Best regards David
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@steve-dragoo,
Hi Steve. 850km os a long way to go for Laser! Actually there are very few K Laser practitioners in U.K., but with Dr Andrew Hall’s help I was able to locate one of the few, who actually practices 50km from my home. What a blessing! Perhaps we need to consult @drandrewhall to see if he has any view on how detrimental it is to leave off the therapy for a few weeks or months. We are hoping to visit NZ in December again for 2 months, but I can’t find any k laser practitioners here who work with humans. They all seem to be vetinarians.
I’m aged 76 and I had a total artery blockage about 20 years ago, but opted for no stents or bypass, as my heart had built up its own bypass. I’ve been on “blockbuster all clear” (serrapepta, nattochinase etc) every since and a recent hospital test showed that I now have no heart problems. I think the serrapeptase may also have delayed the onset of IPF. So I’ve upped the dose of serrapeptase to 500,000 iu per day. Not sure how this relates to SUs.
About 6 months ago, I also started Mitochondrial Rescue Therapy which uses Carnesine and Q10. This helped immediately with my energy levels. I noticed a difference when I had to stop recently when I ran out of supplements while in NZ. More have just arrived, so we’ll see what improvement there is. The link is https://www.mitochondrialrescue.com/
Finally. I can’t find the supplement forum you mentioned. In fact I’m finding it difficult to navigate around the PFnews site?. Blessings David
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Good morning @charlenemarshall. I joined PF. News and set up my profile a few months ago. However, I can’t work out how to insert my profile photo. After selecting my photo, editing size etc. I’ve hit a block. Can’t see any means to next step. Can you help, please? David
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Hi @steve-dragoo, Lovely to hear from you. From your previous posts , I think we are in a similar place re our condition. I also take serrapeptase and am about to start Laser on 29 March when I get back to U.K. I hope the Laser is still proving helpful for you, but am wondering what you will do while you are away from your practitioner. I am particularly interested in this, as I’m hoping to visit NZ again in December. Our son and his family live here. – David
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Hi @steve-dragoo. Just to share my experience with long haul. I live in Uk and am holiday in New Zealand – 2 11hr flights. I am not on oxygen. My resting O2 is 95. Before flying I had fit to fly’ test. I did not experience any discomfort while in flight, but think I may have taken longer to recover from jet lag. The link below may be useful as you can easily check out the oxygen policies of all airlines.
https://www.travelwithoxygen.com/airlines-supplemental-oxygen-policy/
Thanks for all your contributions, which I am following with interest. I start Laser when I get back to England ?.
Enjoy your hokiday in Philippines.
David
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Hi Eleanor,
Following a Fit to fly’ test I flew from Uk to New Zealand in January. I still have to make the flights backs. Fortunately I did not need supplementary oxygen. While researching flying with IPF I found this website useful. It lists all IATA approved airlines and their rules for supplementary oxygen.
https://www.travelwithoxygen.com/airlines-supplemental-oxygen-policy/
I hope you and your husband are able to work out the best way to make the journey. A good vacation, or holiday as we call it in England, is a tonic which we can all do with.
All the best – David
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Hello @charlenemarshall and everyone who has contributed to the Flying with IPF discussion.
I would like to share my recent experience of long haul flights. I live in UK and have recently flown from U.K. to New Zealand involving two 11 hour flights with a 2 hour changeover. Although my IPF is mild and I am not on O2 I was concerned about the long flights, so my consultant arranged a “Fit to fly” test involving 20 minutes breathing air with a 15% reduction in O2 level to simulate cabin pressure conditions. As my resting O2 remained above 90%, I was given the all-clear to fly. During the flights, I did not experience any undue distress although my O2 levels dropped well below 90%. As you may imagine the effects of jet-lag were considerable and it took me about a week to feel normal again. I don’t know if the reduced oxygen level contributed to this. As I am still in New Zealand, it will be interesting to see how I am on the flight home.
Before flying I also did some on- line research. Airlines have different rules regarding supplementary oxygen and some will actually provide this if requested by a doctor. I flew with Korean Air and they would have provided it, if requested.
A useful website for checking Airlines polices is https://www.travelwithoxygen.com/airlines-supplemental-oxygen-policy/
All the bast for your holiday in Hawaii, Charlene. I do hope you make it. It is indeed a great blessing for many of us to be able to travel, so let’s keep doing it as long as we can. David
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Hi @charlene-marshall,
It’s lovely to hear from you again. Today, we had our first rain in a month since we came to NZ, which was very welcome to the locals. Otherwise sunshine and stunningly blue skies.
Regarding the Chinese herbs, I haven’t noticed any significant improvement. It’s difficult to tell when I’m trying so many supplements etc. I’m due for another check with my consultant on 5th April when I return from NZ. Let’s see what the tests reveal.
Take care of yourself.
David
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Hi @drandyhall,
Thanks for getting back to me. I’ve checked out the website of the South Molton chiropractor who has just purchased a class IV laser. He is about 50km from me and the only one in the SouthWest of England.
I will email him in the next day or so, as at present I’m on holiday for the next month in New Zealand. Should I ask him to contact you for treatment details, or can you let me have them to pass on.?
Again many thanks and take care of yourself.
David Swain
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Hi @PeterGoodwin
Thanks for your response. I’ve checked out the website of the South Molton Chiropractor and will contact him tomorrow. I’m in New Zealand for the next month, so hope to set up my first consultation when I get back.
Many thanks and take care
David Swain
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Hello @jeanmichelf, Thanks for your welcome. Neighbours, but in different countries. Yes. try and make it to NZ, it’s eorth the effort if you are up to it. Our don moved here last March, so we are hoping to visit every 12 months, health permitting.
All the best ?
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Hi @charlene-marshall, Lovely to hear back from you so quickly. New Zealand is indeed a beautiful country. The only downside for us in Uk is that it is so far away – two eleven and a half hour flights. I wondered how I would cope with the reduced oxygen levels during the flight, as I am not on O2. My hospital did a test and said I would be OK. Nevertheless, I it took me about a week to recover afterwards, mostly due to jet lag I hope
My favoutite place in NZ, so far is the Bay of Islsnds, in North Island. Also Cape Reinga in the far north where you can see the waves where the Pacific meets the Tasman Sea. I do hope you will be able to make a visit.
Regarding the Chinese herbs, this was a mixture mentionef in the forum about 6 months ago. I printed out a copy of the mixture and asked a Chinese herbalist to make it up for me. Sorry I can’t give more details until I get back home in a months time.
Although Paris is only about 400km from where I live, it is in France. I have however received a welcome from my relatively near neighbour, Jean-Michel Fourrier.
Keep up the good work ??
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Hello Charlene and all the wonderful members who contribute to this forum.
This is my first post and before continuing I would like to thank you Charlene for all your hard work and sympathetic care in managing this forum. I have been greatly helped over the past few months.
I live in the UK although I am on a wonderful holiday in New Zealand at the moment. I will be interested to hear if there are any other members in UK?
I was diagnosed with probable mild IPF last April, but think because of a persistent cough I may have had it for many years. At present my doctors regime is only 6 monthly tests. I am however taking a number of supplements including serrapeptase and Chinese herbs. Also, I am on mytochondrial therapy taking carnesine, which has improved my energy levels enormously.
I am very interested in Dr Andy Hall’s Laser regime and would like to find a chiropractor in UK who can help me. My son is a chiropractor, but he is here in New Zealand whereas I live in Exeter in the South West of England. Despite on-line searching, I have failed to find one. So I am now emailing the Uk distributors of K-Laser to see if they can help. Please, @DrAndyHall, or anyone else, can you help?
May God bless is all as we battle this nasty disease.
Thank you- David Swain