Biography

Name

Diana

Nickname

diana

Year of Birth

1959

Gender

Female

Relationship

Patient

Short Bio

In May of 2017 I was hospitalized due to worsening shortness of breath and low oxygen saturation. Following a Bronchial Lavage, I developed ARDS and spent several weeks in ICU on a ventilator. The diagnosis was Interstitial Lung Disease – Eosinophilic Pneumonia, but later that year was updated to possible Hypersensitivity Pneumonitis with Fibrosis. Three years later, the Fibrosis continues to progress. UPDATE: After Nov 2020 CT Scan, diagnosis has been changed back to Chronic Eosinophilic Pneumonia with Fibrosis.

Type of Diagnosis

PF of known aetiology

Current medication regimen

40mg Prednisone and Levalbuterol Hfa Inhaler

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

I have found a combination of things to be helpful. Prednisone, Ibuprofen, Inhaler, along with eliminating Gluten, Dairy, Sugar and Tomatoes from my diet. I have also taken Activated Charcoal, as it appears my condition may be caused or aggravated by a sensitivity to mold.

Are you currently taking an anti-fibrotic medication?

no

How long have you or the person that you are caring for had PF?

Since early 2017