Forum Replies Created

  • Denyse P Browne

    Member
    August 1, 2019 at 7:20 pm in reply to: Use of Prednisone and Cellcept to Treat PF

    Diagnosed February 7, 2017 with NSIP at UCSF. Lung capacity at 33%. Put immediately on 40 mg Prednisone and 2000 mg CellCept (1000 AM, 1000PM) for one year. Bedridden or move about with 5liters Oxygen 24/7.  Within one year lung capacity improved to 55%. Used portable oxygen concentrator for next 6 months and titrated down on Prednisone to 0. Remained on 2000 CellCept. Then began to titrate down on CellCept slowly. Now am at 1000 daily ( 500 AM, 500 PM)  lung capacity has increased to 78%. No longer on oxygen during day. Use 2L 0 at night connected to my CPAP machine. Have permanent fibrotic scarring but can lead a fairly normal life by pacing myself. My type of NSIP is genetic. Put on 40 lbs. with Prednisone but lost all in 3 months by following strict anti-inflammatory diet. Also benefitted from acupuncture during the first half of second year. Hope this info is helpful.