Holly and I were within a week of each other for our transplants at UCSF.

I experienced several exacerbations both at home and in the hospital.  Thanks to my pulmonologist’s communication with UCSF, I was transferred to San Francisco to await a double lung transplant.  After being there for about a month I was fortunate to receive my… Read more

This reply is for all of you(except Christie-thankfully!)

I am 2 1/2 years post bilateral lung transplant, and had several exacerbations before getting my transplant at UCSF.  Christie’s mother was there at the same time I was.

As someone who was very fortunate to get the necessary transplant to continue my life.  I urge all of you to seek… Read more

Christie,

We obviously were!  My transplant was May 9th, 2019!

Dennis

I second what Christi said about UCSF!
I was 72 in 2018 when I was accepted as a transplant candidate at UCSF.
When I went for my initial evaluation meeting with their staff, two of my grown children and my wife were with me.  UCSF is very cognizant of your support group, and I really feel having so many family members with me really helped… Read more

I got my booster on the 24th…Arm still sore, but fatigue is fading…I’m just happy to get the booster!  Wear your masks and stay safe out there!

I had three exacerbations after being listed for transplant at UCSF. Two times at home, from where my wife called 911 and I was transported by paramedics to the hospital.  Both times even though I was on a lot of oxygen, I still couldn’t get adequate O2 saturation.  The third one occurred while I was back in the hospital.  My Pulmonologist… Read more

As soon as UCSF gives the ok for it’s transplant patients, I’ll be there to get it!

 

I too had tremors after my bi-lateral transplant.  They were mostly prevalent in my hands, but sometimes most of my body would shake!  The tremors happened quite frequently, and finally got less and less.

I got very frustrated during the lengthy stay I had in the ICU!  I had a tracheotomy so the only way I could communicate was when they… Read more

Kathleen and Mike,

As previously posted, I had a bi-lateral lung transplant in March of 2019. (72 years old)

Prior to the transplant I had 3 exasperations.  The first two at home, from where I was transported to the ER.  The third one came while in the hospital.  My Pulmonologist contacted UCSF, where I’d already been evaluated for possible… Read more

Charlene,

I thank you for your reply to my post!

If you care to private message me as you go through your preparations for attaining a transplant, and post transplant recovery, feel free to do so…I will be happy to help any way I can…

Stay strong,

Dennis

Hi Charlene,

i just celebrated my 1 year anniversary of my bi-lateral lung transplant!

I’ve been wearing masks in public for many months, since my release from the hospital.  Initially I was very conscious of people looking/staring at me.  Not so much anymore.  I still sometimes mention to them I’m not contagious, and I’m only trying to… Read more

Mike,

You asked how old I was when I got my transplant.  I was 72 in March of 2019, when I received my surgery, and turned 73 in November of 2019.  I’m told some transplant centers are more cognizant/reluctant of your age than others?  UCSF did my transplant, and I’m happy to say they were/and still are wonderful!

There was a post a short time… Read more

Charlene,

I took Esbriet for about a year and a half, before my bi-lateral lung transplant.  My Pulmonologist recommended it over Ofev.  I had no extensive reactions while on Esbriet, except for occasional diarrhea.

I am now 11 months post op, and still gaining strength.  It’s been a long recovery, which was extended because I didn’t work hard… Read more

I’m 9 months post op from my bi-lateral lung transplant at UCSF.  I was 72 years old at the time.  I had several major exasperations after being listed by UCSF, and after the third one I was transported to UCSF to await my transplant.  I was very fortunate…Three weeks after my admission I received my new lungs!  It was a pretty tough… Read more