Denny Eliassen
Forum Replies Created
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Pam, every ILD is different. I was diagnosed in 2016 and I knew I had a lung issue since I play hockey. It was progressing fairly rapidly so I went to the pulmonologist had a CT scan and got diagnosed. I did some research and found a company with many documented cases of improvement with the use of Chinese herbs (WEI Labs). Their protocol is a 90 day treatment of the herbs. I was struggling to play hockey because of my breathing but the herbs seemed to stop the progression of the disease. I am 73 and I’m playing hockey but taking shorter shifts. I have had breathlessness since I had Covid and have had long Covid for 15 months. Several others on this site have tried the herbs with good results, one went off oxygen. They are expensive.
Denny
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Pam, every ILD is different. I was diagnosed in 2016 and I knew I had a lung issue since I play hockey. It was progressing fairly rapidly so I went to the pulmonologist had a CT scan and got diagnosed. I did some research and found a company with many documented cases of improvement with the use of Chinese herbs (WEI Labs). Their protocol is a 90 day treatment of the herbs. I was struggling to play hockey because of my breathing but the herbs seemed to stop the progression of the disease. I am 73 and I’m playing hockey but taking shorter shifts. I have had breathlessness since I had Covid and have had long Covid for 15 months. Several others on this site have tried the herbs with good results, one went off oxygen. They are expensive.
Denny
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Karl, I would seriously consider trying WEI products for respiratory (soup A and B plus LC balancer) pills. There are no side effects because it is an herb. I went from being ready to give up playing hockey to now playing 4/5 times per week and feeling GREAT! Both of my pulmonologists recommended NOT to take anti-fibrotics because my last 3 function tests have been stable or improved 5% to 7%. Go to famousdoctors.org and check out some patient results. If you are interested the herbs are expensive but call Gabrielle Dunn at 612-808-9234 in Minnesota. I took them for 2 months and then 1 month a year later. She will send you any information that you want. Good luck!
Denny E
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Hi Julie,
I have posted several times on this website about my experience with IPF. I have played hockey for 50 years and 2 years ago after shoulder surgery my breathing was declining fairly fast so I went through all of the tests (PFT and CT scan) and was diagnosed with IPF. My U of M pulmonologist wanted to do a biopsy but my Pulmonologist at Cleveland Clinic said NO to a biopsy because he knew the scarring pattern. I told him that I had GERD for years on and off so he sent me to a GI. My breathing was getting so bad that every time I went on the ice I could only skate for a few seconds and then waiting for my next turn on the ice I broke down thinking that this may be my last time on the ice. Doing research I ran across WEI Laboratories and tried their 3 products for IPF for two months and for GERD for two weeks. I was then tested for Gerd and there was NO TRACE! I tried the IPF herbs for 2 months and a maintenance dose a year later and I am almost back to normal breathing and my last 3 PFTs have improved each time, some numbers are up around 200% of what they should be. The herbs are expensive but I am quite sure that they worked for me. I am playing 4 or 5 games per week because it is my passion! There are doctor comments that say many have gotten a lot better and/or cured. I think that you should give the herbs a try…
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Steve, I would try the products for two weeks to see if you benefit by them (soup A, soup B and LC balancer). They are expensive but well worth it to me. They have products for every condition but have had great success on respiratory clients.
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I use the products from WEI institute one month out of the year and used it for two months in the beginning and each of my 2nd, 3rd and 4th lung function test improved and my CT scan showed almost no increased scarring in one year. I was diagnosed almost 2 years ago. I am going Thursday for my 6 month test and scan. I have been feeling very good and I play hockey 4 to 5 times a week. I am 68. I have posted about this before since there are some doctor testimonials on their website.
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I have had coughing attacks and my voice gets hoarse but I have found that when the coughing starts I lay on my stomach or my side and the phlegm/mucos comes easily because your body doesn’t have to push it up. It works every time and takes about 10 to 15 minutes to expel it.
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Charlene, have you tried the WEI products yet?
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Sorry but my email accounts went down for 2 days. The products from Amazon was from WEI Lab, they were just trying to undercut their price a bit but I don’t know if they still sell them. They are very expensive about $900 for a month supply. It is soup A, soup B and LC balancer. Get the pills and not the liquid. The Chinese herbs that I got from my acupuncturist were only $50 for a 2 week supply but not specific for respiratory like WEI Labs. Wei sells 8 or 9 products for different lung problems, but the 3 that I got were for IPF and one has plant herbs that are supposed to stop and reverse the scarring. They have one to reduce phlegm, a couple for infection, one for inflammation, etc. They say you will feel improvement within 2 weeks so I would try a 2 week supply if you are skeptical. I have had 4 function tests in 18 months and each one improved or remain constant.
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I believe that the GLPG1690 study is called ISABELLA.
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Just so everybody knows about WEI products: there are documented cases of people with IPF getting off of oxygen, many have improved and some have been cured even in advanced cases. I read about some of the cases in their “famous doctors” articles. They recommend 3 to 4 months for severe IPF and 2 to 3 months for moderate cases. I took 2 months originally and took a month of herbs a year later and a 2 week maintenance just recently. I truly believe that it has worked for me as did the GERD 2 week herb which I can’t remember the name. You can call Gabby at WEI (612-808-9234) and she will give you any info on the soup A, soup B and LC balancer or other herbs. I get the capsules because the liquid tastes TERRIBLE! Also Amazon sells this also because I believe they buy from WEI and it is a little less expensive and with prime no shipping $. I got the Chinese herbs from an acupuncturist for my cluster headaches but only helped a little. Finally and very interesting is todays article “mutation prevents mucus in small airways as an IPF risk. That could be me!!!!!!!!! If you search Galapagos you may be able to get into that GLPG1690 Study in Jan/Feb at U of M. It has been shown to reverse fibrosis with NO significant side affects!
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Steve -I just got back from my 6 month Lung function test at U of M and all of my numbers improved between 1% and 6%. He said no CT scan for 6 months and he is putting in this clinical test if I qualify for the phase 3 promising drug GLPG1690. My other pulmonologist at the Cleveland clinic was going to do that also since he trainer and friend developed the drug 5 to 6 years ago. The lab where I get the herbs is in Minnesota and they have one other place in California. Call WEI Labs and talk to Gabby if you are interested. I did get some Chinese herbs from my acupuncturist for much, much less money but I don’t know how well they work. The ones from WEI are specific for respiratory diseases. On a side note- I play hockey 3 to 4 times a week so I am in good shape. Most of my numbers are between 140% and 200% except for my bad number at 79% which is the CO2 and that is my concerning thing.
Denny
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Did anyone see the article from the foundation that a drug used for multiple myeloma worked better than esbriet on people with IPF in a study? Very interesting!!
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I used clear lung and CL2 from WEI and it took care of my phlegm problem. Also had GERD for a while, I took a product from WEI for 2 weeks, went to the GI and had a manometry test done and there was zero trace of GERD so I believe in their products.
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Steve, are those supplements Chinese herbs? Can you tell me more about them. I have tried Chinese herbs and have improved my function test 3 times! Just curious which ones that you are talking about.
Denny