[Dennis Schiavon]

Hello Wes – thank you for that, something encouraging at last!

Could you tell me (only if you don’t mind) about what stage of PF you’re at, what your FVC percentage is, if you know it … just so I can compare with my situation. No worries if you’d rather not say…. Cheers

Dennis

[Dennis Schiavon]

Thanks again Scott

I’ve now had a reply from Action for Pulmonary Fibrosis, and they too advise caution, simply because not enough is known about it yet (from a PF viewpoint) and proper large-scale trials would need to happen first.

So I’ll keep thinking hard about it … and in the meantime, where did I store that mask and flippers … ?! 🙂

[Dennis Schiavon]

Hello there Mindy, Richard and Susan.

Thank you so much for sharing your experiences and views … I shall certainly follow-up and treat this with caution – and very likely avoid wasting loads of cash!  The search goes on….

Dennis

[Dennis Schiavon]

Hello there Scott, hoping all’s well with you, and thank you for your thoughts  …. I’m thinking along the same lines, trying to find reliable information from more than just the glossy brochures! I’ve asked my hospital consultant and respiratory nurse, and they’re urging caution, and I’ve also asked the support team from the wonderful UK charity Action to Pulmonary Fibrosis (awaiting reply). If I find anything useful I’ll put it up here.

Interestingly, I’ve found HBOT isn’t only provided by commercial businesses in the UK. Down our way (Midlands and South-West) there are two charities that do it at vastly reduced prices compared with the commercial people. In both cases they’re originally set up for people living with MS and other neurological conditions, but make it available to people with other illnesses too.

All the best….

[Dennis Schiavon]

Wow, thank you for this,  Bruce – so some very different and opposite experiences here. Indeed need to think and be cautious!

[Dennis Schiavon]

Thank you Michele – that sounds encouraging…