Thanks, Sandy-Richardson, I’ve been taking a very low dose (about .2ML) with juice. Guess I need to try taking in directly into my mouth though I already am struggling with the constipation. You said you take it only when absolutely necessary. If you don’t mine telling me, what would conditions need to be like for your to feel the morphine…

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I’ve just started taking morphine at my doctor’s suggestion.  I’m taking 0.2ml (4MG) but it does not really seem to make a difference. Here are my questions, what has been your experience taking morphine?  How much are you taking?  What difference does it make (ie, does it slow down the rapid breathing? Or does it weaken the chest tightness?)… Read more

To everyone — thanks for engaging with me as you’ve done.  I appreciate it!  You’ve given lots of great suggestions and I’ll be checking with my pulmonologist about it.

Yes, Christie.  I was through pulmonary rehab over a year ago.  It would be great if I could do that again but I don’t think that’s possible.

Thanks!

Don

Hi Fellow IPF travelers —

Got a question for you.  I’ve had IPF now for about nearly 12 years.  I’m on oxygen 24/7 — at 2 lpm at night and from 3.5 to 5 lpm during the day.  During moderate exercise I can usually experience a saturated oxygen level of 95-99% yet my breathing will be rapid and labored (like 50 or so breaths per minute).… Read more

Thanks Eileen, you have been most helpful.  Keep going!  Don

Thanks David.  I appreciate your thoughts and insight.  Don

Hi Fellow IPFers —

I really appreciate the posts you folks have provided.  It sounds though the you are younger than I am and are possibly in better circumstances than I am.  I’m 75 and have had IPF since 2011.  I’m now retired with no intentions of returning to work.  While uncertain, my doctor suspects my PF has been influenced by… Read more

Charlene,

 

I really appreciate your question about hope and want to respond. However I prefer to thoughtfully draft a response offline and then cut and paste. I did this once before several months ago and somehow had many extraneous character interspersed in my test. As I recall you fixed that and indicated a repair was underway to prevent… Read more

Thanks so much Char and Ida for your kind words.  In this IPF journey it is real easy to fall into the mode of simply trying to “survive” life.  Instead I want to “thrive” in it. My shiny new marble each day helps me do that!  Don

<p style=”box-sizing: inherit; margin-top: 0px; caret-color: #555555; color: #555555; font-size: 11px; font-family: ‘Helvetica Neue’;”><span style=”box-sizing: inherit; font-size: 12pt;”>I’ll share my story.  I was diagnosed with IPF in 2011. For some time now I’m been waking up thanking God for my “shiny new marble” and asking God to help me… Read more

Thanks Guys for the input.  The purification system I’ve been looking at is a bit more expensive than your leads so I appreciate the suggestions.   But I’m wondering, have any of you done the research to determine what kind of system is needed for combating viruses to make breathing easier for on IPF patient, ie, what size micron particle should… Read more

I’m a 75 year old male with IPF since 2011, now on oxygen when active and doing fairly well though breathing is slowing getting more difficult.  We are considering installing a whole house air purification system in our HVAC system.  Do any of you have experience with this and recommend it.  In particular we’re looking at the “Dust Free Air… Read more

I’ve been taking caffeine free EGCG Green Tea Extract (300 mg with breakfast and dinner daily) for about five months to combat IPF.  I have no evidence that it has helped or not helped my IPF, but I have had no weight loss during this time.

Thanks Mark.  What you suggests makes sense.  I will follow-up on that,

Say Mark, I’ve not used this forum much and have a question on process.  You’ll notice a larger amount of extraneous text at the front of my post.  Do you have any idea what I may have done to cause this to occur?  Thanks!

<p style=”margin: 0px; font-stretch: normal; font-size: 11px; line-height: normal; font-family: ‘Helvetica Neue’; color: #000000; -webkit-text-stroke-width: initial; -webkit-text-stroke-color: #000000;”><span style=”font-kerning: none;”>Hi Fellow IPF Friends,</span></p>
<p style=”margin: 0px; font-stretch: normal; font-size: 11px;… Read more