[Donald Salzberg MD]

Hello. I’m Don aka Doctor Don. I’m an Ophthalmologist (65 yo) who was diagnosed with IPF 18 months ago but i knew even 2.5 years ago something wasn’t ok. I am a bigger fan of alternative medicine than before. I’m looking into Tai Chi for IPF. I am tolerating OFEV 150 mg bid. I’ve had success with taking Zofran 8mg with my AM pill—less nausea (which is random). I’m also excited about an article i read on inhalation of lung stem cell secretions. I’m grateful that OFEV and Esbriet are available. Did you know they were approved in Japan over 10 years ago??I’m angry at our FDA as I think and know  patients who never got the opportunity of these meds. I’ve read about acupuncture benefits as well. Many trials going on—learned of one for IPF patients with persistent coughing. I agree that once you are using oxygen regularly it’s likely to become necessary. Anyone that has passed the altitude test (15% oxygen for 30 min) (I did) and still get hypoxia (low oxygen) in an airplane??  I’m normally at 95% SiO2 and mine dropped to 83-85!!  Don