Duncan Fowler

I am on 150  mg OFEV 2X daily.  I usually have milk with my meals.  I never noticed that this was a problem.

Yes I have had diarrhea on occasion but I have never associated it with my OFEV.

Dunc

Yes, I participated in one at Mercy Hospital located in Coon Rapids MN.  The RT was Robbie Crannick.

It was a helpful class as it made me get there and exercise

Dunc

Duncan Fowler,

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I do wish it would also give us our Blood O2 saturation.

I have suggested this to Apple at

https://www.apple.com/feedback/

You can too.  Maybe if enough of us do that Apple will implement the idea.

The Apple watch also prompts you to take deep breaths several times a day.  That has to be good for us IPFers.

I sent a note to my Pulmonologist about Metformin.  She is also well involved with the research community.  Her response was that there are enough significant differences between Mice and Men (And ladies too) that you should not draw any direct conclusions about how it will work with IPF in humans.  That there is a lot more research needed to be…[Read more]

Charlene,

Unfortunately yes.  For me, it is Red or White.

Although If I have my wine with a meal all seems to be OK

Dunc

I too have looked for a watch that accurately displays O2 saturation.  I don’t think there is one on the market yet.  Maybe Apple will include it in a future build.  (I do like my Apple Watch)

I have found that OFEV and wine causes me to have explosive diarrhea.
I miss my wine at night!

I have had the issue of moisture condensing in the line going from the concentrator to the nose piece.

I have found that always filling the humidifier bottle NO MORE than 1/2 of distilled water seems to work for me!

Good Luck

Dunc

It does make sense that Vaseline is flammable.  It is a petroleum product.

Afrin, here in the States is an over the counter (OTC) nose decongestant.

Here we find it in Grocery stores, Drug Stores and on-line such as Amazon. 🙂

It is supposed to keep you unplugged for 12 hours.

It seems to work fast for me.  But, you can always pinch your n…[Read more]

Hi Charlene,

Yes I do take OFEV and do suffer from nosebleeds but I don’t believe it is the drug.

I am also on Oxygen for about 16 hours/day and that includes while I am sleeping. I have been told that nose bleeds and Oxygen users are quite common.  The key to prevention is humidification for me.

If my humidifier bottle goes dry on my Oxygen…[Read more]