Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Ellen

Home Members Ellen
show less show more
Profile picture of Ellen

@elle2021

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Ellen

    Ellen replied to the topic Painful side effects? in the forum Esbriet (Pirfenidone) 10 months, 3 weeks ago

    I experienced similar pain, around the bellybutton area & right, this was what I thought coming from the liver. I also was confused & very tired, could not hardly get to bathroom, stayed constipated & severe nausea. I was dehydrated & no appetite. My daughter came in one night after work & had a difficult time waking me up. Did I say I lost 15…[Read more]

  • Profile picture of Ellen

    Ellen replied to the topic Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports in the forum Flash Briefings & Podcasts 11 months, 2 weeks ago

    Jill, do your research. Doctors nowadays want to put us in one category or another. 30 y of nursing never prepared me for this event in my life. My Gene’s from my mother (Scleroderma) is an autoimmune disease. These diseases play havoc with all of your internal organs. ie. heart, pancreas, lungs & now 2nd to OFEV my kidneys, I ended up in a renal…[Read more]

  • Profile picture of Ellen

    Ellen replied to the topic Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports in the forum Flash Briefings & Podcasts 11 months, 2 weeks ago

    Hello to all of you Pf/IPF individuals out there. My pulmonary doc  mentioned & prescribed OFEV for me in November after lung biopsy in October. I was mentally prepared for whatever side effects came. I will say, I could have dealt with the diarrhea, & a little nausea. However, I was not prepared for the see-saw effect of BP & sugar. I had severe…[Read more]

  • Profile picture of Ellen

    Ellen became a registered member 1 year ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year ago

      Welcome to the forum community Ellen, we’re glad you found us!

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

Profile picture of Dennis H

Newest Topics

  • Hot Flashes by Daughter
  • Improved spirometry values by Monica Loftin
  • Sunday “Resets” by Charlene Marshall
  • Following quarantine etc. does a positive home test mean I am still contagious? by Walter Gerstmann
  • PF secondary to COVID pneumonia–did anyone receive the drug baricitinib? by Sherry

Recent Replies

  • Questions about Ofev
  • PRM-151 Clinical Trial ?
  • PRM-151 Clinical Trial ?
  • PF secondary to COVID pneumonia–did anyone receive the drug baricitinib?
  • Using supplemental oxygen

Members

Newest | Active | Popular
  • Profile picture of Dennis H
    Dennis H
    Active 48 seconds ago
  • Profile picture of U. Samarakoon
    U. Samarakoon
    Active 27 minutes ago
  • Profile picture of Roberta
    Roberta
    Active 39 minutes ago
  • Profile picture of Kim Morrison
    Kim Morrison
    Active 56 minutes ago
  • Profile picture of Jeffrey Carver
    Jeffrey Carver
    Active 59 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen