Biography

Name

Ellen

Nickname

elle2021

Location

NC

Short Bio

Dx 2021 Oct, confirmed via lung biopsy. Also have an autoimmune disease. Scleroderma, inflammation which causes my body to attack itself mainly the major organs, in my case anyway. I was put on Ofev, I Immediately I suffered with severe nausea, no appetite, fatigue, bp dropping. I am diabetic, Afib, Degenerative disk disease, just to name a few. I soon discovered I was not metabolizesing the Ofev, after 3 month and at loss 10 pds and muscle mass loss, my doc placed me on 150mg ea. day @ night. I take related meds to health issues about 6 pills twice a day. I am a young 68. Has anyone else experienced not being able to metabolize their meds (ofev) I was often confused, & now have essential tremors. Thank you for your help. Ellen

Type of Diagnosis

familial/genetic PF

How long have you or the person that you are caring for had PF?

Since Oct 21 after a lung biopsy, I have suspected I had PF, since my mother had it

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