Forum Replies Created

  • ellen-haley

    January 7, 2019 at 12:52 pm in reply to: Your Doctor can Request a Second Opinion

    Hi Charlene,

    In reply to your Jan 6 question the Pulmonologist suggested moving to new construction, something above ground level. She thought that in the woods, on a lake created too much exposure to mold and moisture.

    She did agree that running dehumidifiers, adding another air purifiers and getting rid of down comforters and pillows should help.

    I am still looking into having testing done on the air quality in my home  Robin’s comments have been very helpful


  • ellen-haley

    January 5, 2019 at 11:30 am in reply to: Your Doctor can Request a Second Opinion

    Thanks again Robin,

    One of the companies  I talked with suggested a short air Sampling done in one visit the other suggested a 7 day air sampling, stating that those that suggest a short sampling do not allow a complete picture of indoor air quality.  I have not yet made a decision and may try your idea to get a third estimate.

  • ellen-haley

    January 5, 2019 at 10:26 am in reply to: Your Doctor can Request a Second Opinion

    Robin and Charlene thanks for this discussion. Robin hope I am not too late to the discussion. I would appreciate receiving copies of your reports and costs as well as how you found an Industrial Hygienist. Email:   ehaley3

    I too sought a second opinion at Johns Hopkins after being diagnosed with IPF in my home town. Doctor at JH diagnosed HP and highly suggested I move from my home which is in the country next to a lake. Extensive Blood tests they did revealed no positive antigen.  Selling a home and moving is no easy job, especially if we don’t know if it will make a difference.

    I have removed all down pillows and comforters (that I have been using for over 30 years) and put in another air purifier. I have received quotes from $500 to $1,500 to have air quality tests done in my home.

    Robin, Any information you can pass on to help make decisions around this HP diagnosis would be very welcome. Thank you , Ellen Haley