Forum Replies Created

  • Evertt Eudy

    Member
    May 14, 2018 at 10:42 am in reply to: Finding out you need supplemental oxygen

    Hello Charlene, thank you for responding again, And for your concern about self checking my 02 levels myself, I understand

    The pulmonary Dr. Put me on 1 inhaler, 1 puff 1 time a day, its  Stiolto Respimat, ( Tiotropium  bromide and olodarerol ). Not sure if its a steroid or not, thanks again…

  • Evertt Eudy

    Member
    May 13, 2018 at 9:39 am in reply to: What are the different stages of PF?

    Hello Charlene, Yes this will be my 1st lung function test by the pulmonary Dr.  I did have a high resolution cat scan of my lungs while I was in the hospital, the Dr. Showed us and pointed out much of the damage to my lungs, I ask if it was bad, he replied YES !…Just how bad, we wont know until the full lung function test is given on June 19th. Again its very frustrating and depressing to only know this much. Thank you for ANY thoughts you may have .

  • Evertt Eudy

    Member
    May 13, 2018 at 12:50 am in reply to: Finding out you need supplemental oxygen

    Just tested my 02 again….with 02 on, my 02 saturation reads 95/97  @ 3 Ltrs. Per min. I took it off and walked around the room several times, put my 02 meter on and it dropped to 78 very fast !  Still watching it with the meter still on you can watch it drop from 78,….clear down to 70…Then taking deep breathes, as much as I can it increases back up to the mid 80’s and stays in that area until I feel the need for 02 again, and put it back on…within a few minutes it goes back to mid 90’s again !…I am very confused.

    Remember I have NOT had my lung function test yet, not until June 19th. This waiting around with only an inhaler is flustrating and depressing, not really sure how bad I am or what stage am I in….?  Sorry to keep repeating the same thing, but I am just trying to be as clear as possible.  Any ideas at what stage, or just how bad is this ?  Thank you very much for responding !

  • Evertt Eudy

    Member
    May 11, 2018 at 8:55 am in reply to: Finding out you need supplemental oxygen

    I was put on oxygen 24/7 for now until I have a full lung function test on the 19th of June. Yes there was cracking in my lungs. Not sure what a HRCT Scan is. Not to worry about the questions. At rest my 02 is about 90-95. But if I take it off to shower or anything with minor exercise, it drops into the 70’s quite soon. Thank you for your help.

  • Evertt Eudy

    Member
    May 10, 2018 at 1:12 pm in reply to: What are the different stages of PF?

    I wont get the lung function test until June 19th.Seems its a long time till then. I am on 2 ltrs. Of oxygen at home, if I take it off for very long…say 15 mins. It drops into the 60 ‘s if I am doing much activity . What does that sound like to anyone else ?

  • Evertt Eudy

    Member
    May 10, 2018 at 10:36 am in reply to: Finding out you need supplemental oxygen

    Just diagnosed 5-4-18, was put on 2 ltrs. Oxygen, 02 levels off ox. Were in the 70’s…on ox. 93 x 95..Noticed that if I take off the oxygen for about 15 mins with little activity, it drops into the  60’s . Still havent been told what stage I am in. Wont get my lung function test until June 19th. Just wondering what thoughts are out there ?