Biography

Name

Falguni Patel

Nickname

falguni-patel

Year of Birth

1991

Gender

Female

Location

London

Relationship

Family

Short Bio

Hi Everyone,

My wife Falguni has been suffering from PAP (pulmonary alveolar proteinosis), Aspergillious, Fiberois, Sleep Apnea and Pulmonary Hypertension.

She is very unlucky in how she has inherited these. She is on o2 24/7 6l when rest and 15l when walking. Her condition took a worse for in 2018 where she encountered a very nasty pneumonia which she fought for her life and made it mircally but this left more scarring on the lungs.

We are seeking lung transplants in various different countries it is very hard as no one is accepting my wife so hence we thought it might help to join a forum and share our condition with anyone who might have a similar condition to help us.

Thank you for you listening.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Lung Transplant

Lung transplantation status

to be determined, currently in evaluation process

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

5 years

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