Forum Replies Created

  • Jenny

    Member
    March 9, 2021 at 3:37 pm in reply to: Supplemental Oxygen Questions

    Something I have learned recently,

    Make a plan ahead of time for how you will get more oxygen quickly when needed. With Covid it may not be as readily available as you would want.  Make sure to not struggle too much as I’m certain (though not a doctor) this exacerbates the entire process. Have and use more oxygen when struggling. Make sure you balance the fear of covid (no doubt real) and seeing your family. Love to all with this disease.

  • Jenny

    Member
    February 25, 2021 at 3:07 pm in reply to: POSSIBLE MISDIAGNOSIS

    Hi Mark,

    Sure you must have mentioned before with more info, but saw you said you are no longer taking Ofev. My father just stopped Ofev because he could not tolerate it. Currently they only have him only on prednisone. Did you switch to esbriet or some other medication?  Wonder what the incidence of switching from one to the other is because that seems never to have been considered by my father’s doctor.