@gary-kitahara
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Gary Kitahara replied to the topic Dying from IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago
Hello Bill,
I’m new to the forum and have been reading about your struggles. I don’t understand the limit of oxygen at 9.5 lpm, I have been using dual 10 lpm concentrators for a while as my needs are 14 to 16 lpm. Are you using a humidifier with your concentrator? The saline spray and gel do help, if you have not used a non-rebreather mask yo…[Read more]
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Gary Kitahara replied to the topic Dying from IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 2 months ago
Starting from the top, Megan so very good for sharing your life experience with your father. It could be a path, my life might follow. To Bill sorry for the diminished ability to do what you love, not so sure on the age limit, depending on the institution and your comorbidities I would not give up, Johns Hopkins has had success in your age group…[Read more]
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Gary Kitahara replied to the topic Supplemental Oxygen Backpack/Carry Bags. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 3 months ago
I use a small hydration pack from Bass Pro to carry my Companion 1000T, it would carry 2 M6 or 1 M9 tank. I have been using this pack for several years.
https://www.basspro.com/shop/en/bass-pro-shops-eclipse-20l-hydration-pack
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Gary Kitahara posted an update 4 years, 3 months ago
Well not sure how to start, hello to all on the forum. I was diagnosed with IPF in 2016, in June of 2017 I had a bronchoscopy done and it did not go well, went into the surgery only needing 2 liters of oxygen at night, post-surgery needing 8L’s all the time. Before the bronchoscopy I would sometimes carry M6 tank with a pulse regulator as one o…[Read more]
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Gary Kitahara joined the group
Research and Development 4 years, 3 months ago
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Gary Kitahara became a registered member 4 years, 3 months ago
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Gary Kitahara's profile was updated 4 years, 3 months ago