[Gary R. Denig]

I live in Lima, Ohio but receive my care at Ohio State University in Columbus, OH which is about 100 miles from my house. They have a support group which meets quarterly. I am taking pulmonary rehab at St Ritas Medical Center in Lina, Ohio and have suggested they start a support group for everyone going through the program. But that is not likely to happen. I am in my final testing for a lung transplant. Praying for all those affected with this horrific disease.

[Gary R. Denig]

Hi Charlene,

I was Dx with PF in October 2015 and started on oxygen 2 lpm. By April 2016, my PFTs dropped so my oxygen was adjusted up to 4 lpm 24/7. I was on Pirfenidone for about one year with no noticeable improvement. Starting last October 2017, I started on 10mg Prednisone daily.i have not had any side effects and tolerate it well. For sleep, every night for 30 to 60 minutes I practice visualization, relaxation using a video which focuses on positive healing messages. Before I go to sleep I want my mind to be focused on “I can do it”. At first, I noticed s slight bump in my weight but that has been corrected by watching my intake more carefully. I am going through the evaluation process for a double lung transplant. I’ve been evaluating the costs short term and long term though it does create stress. My prayers to you and all who suffer. May you find peace, rest, and comfort.